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The Prune Belly Syndrome Network (PBSN) is a 501 (c)(3) nonprofit organization dedicated to supporting those who were born with Eagle-Barrett syndrome, more commonly referred to as prune belly syndrome. We work closely with those who have PBS as well as their family, friends, and entire support network.
https://prunebelly.org/about-us/
MISSION STATEMENT: The Prune Belly Syndrome Network, Inc. (PBSN) is a volunteer-led, Internet-based corporation devoted to disseminating timely and accurate information about prune belly syndrome to people born with it and their family members, physicians, and other interested parties.
https://rarediseases.org/organizations/national-prune-belly-syndrome-network/
Description The National Prune Belly Syndrome Network (NPBSN) is a self-help organization dedicated to providing support and information concerning prune belly syndrome, a rare disorder in which partial absence of certain abdominal muscles occurs in association with …
https://www.facebook.com/PruneBelly
Prune Belly Syndrome Network -PBSN, Philadelphia. 4.7K likes. Welcome to the Prune Belly Syndrome Network, Inc. Facebook Page! www.prunebelly.org. We are a 501(c)3 volunteer organization serving...Followers: 4.6K
http://prunebellysyndromenetworkinc.camp9.org/
A Donation as little as 10 dollars can help bring hope to individuals and families coping with Prune Belly.. You will be given the option to choose where you want your donation to go to work. Just hit Donate Now. Support for today, hope for tomorrow....
https://rarediseases.info.nih.gov/diseases/7479/prune-belly-syndrome
Aug 25, 2016 · Prune belly syndrome (PBS) is a condition characterized by a lack of abdominal muscles, causing the skin on the abdominal area to wrinkle and appear "prune-like"; undescended testicles in males; and urinary tract malformations. PBS is more common in males. The severity of symptoms can vary greatly from person to person. At one end of the spectrum, the condition may cause severe …
https://www.ncbi.nlm.nih.gov/books/NBK544248/
Prune belly syndrome, also referred to as Eagle-Barrett syndrome or the triad syndrome, is a rare congenital disorder characterized by the triad of deficient abdominal musculature, cryptorchidism, and urinary tract abnormalities.[1] Children born with this condition present on a broad spectrum ranging from incompatibility with life to aging normally and having children of their own. The ...Cited by: 61
https://www.diseaseinfosearch.org/organization/Prune+Belly+Syndrome+Network%2C+Inc./55
The specific purposes for which this corporation is organized are: To disseminate timely and accurate information about Prune Belly Syndrome to patients, family members, physicians, and other interested parties, to provide means for patients and relatives to share experiences, support one another, and improve their medical care, to encourage, advise, and establish standards for the diagnosis ...
https://www.facebook.com/ElijahPruneBelly
Elijah's Prune Belly Page, Wellington, New Zealand. 886 likes. The highs and lows of Elijah's journey with multiple rare disorders. Jump to. Sections of this page. ... Gastric Reflux Support Network NZ. Prune Belly Syndrome Network -PBSN. AppyMall. Mountain Buggy. Aeros' Prune Belly Syndrome Page. Cure Kids. The Neonatal Trust - New Zealand.Followers: 835
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