Sarcoidosis Support Network

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Sarcoidosis Network Foundation, Inc

    https://www.sarcoid-network.org/
    The Sarcoidosis Network Foundation is an entirely nonprofit organization. Our mission of education, support and awareness is not free however. Even provisioning and operating this website costs money.

Stop Sarcoidosis Support Group & Forum - Inspire

    https://www.inspire.com/groups/stop-sarcoidosis/
    The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Foundation for Sarcoidosis Research, an Inspire trusted partner. More about this community

Foundation for Sarcoidosis Research

    https://www.stopsarcoidosis.org/
    Since sarcoidosis is a rare disease, it can be hard for patients to find a support system who understands what they are going through. For that reason, FSR started a Stop Sarcoidosis support group on Inspire, a health and wellness-focused online community....

Support Groups - Foundation for Sarcoidosis Research

    https://www.stopsarcoidosis.org/living-with-sarcoidosis/support-groups/
    Find a Local Support Group. In-person support groups provide an outlet for patients and family members to share experiences, emotions, and knowledge. Because of this, FSR maintains an online directory of independent sarcoidosis support groups in the …

Sarcoidosis - American Heart Association

    https://supportnetwork.heart.org/survivor-stories/sarcoidosis/
    Sarcoidosis February 20, 2018 10:32pm EST. I will try and make it short. I have been dealing with this heart failure a year and a half. They found sarcoidosis in my lung. They did a pet scan and then never really told me the results. So recently I was looking at my medical records online. There it was, sarcoidosis in my heart.

Irish Sarcoidosis Support Network ISARC Information

    http://isarc.ie/
    Welcome to the Irish Sarcoidosis Support Network. Our aim is to provide support to patients diagnosed with Sarcoidosis, as well as their families and carers.Through this website, group meetings and direct contact, ISARC provides information to those concerned about the condition and the services that are available. ISARC also works to promote awareness to the general public and healthcare ...

SarcoidosisUK Support Groups - Meet Others With Sarcoidosis

    https://www.sarcoidosisuk.org/support/support-groups/
    SarcoidosisUK run a network of Support Groups across the UK. Our groups are an opportunity for you to be heard by people who understand what you’re going through, to share experiences of sarcoidosis and learn from each other. You can learn more and find your closest support group on this page.

Information on Sarcoidosis - Sarcoidosis Network Foundation

    https://www.sarcoid-network.org/information.php
    Education, support and awareness are primary missions of the Sarcoidosis Network Foundation. Because this disease attracts less attention than others, it is often difficult to obtain accurate information about it, or learn of other patients.

SarcoidosisUK Support Groups - Meet Others With Sarcoidosis

    https://www.sarcoidosisuk.org/et/support/support-groups/
    SarcoidosisUK's Support Group network runs free meetings across the UK. Share your experiences with those who really understand what you are going through.

Is There a Link Between Chronic Illness ... - Sarcoidosis News

    https://sarcoidosisnews.com/2019/10/02/post-traumatic-stress-disorder-ptsd-chronic-illness/
    Lack of a support network increases the risk of PTSD. If you feel like you may be experiencing PTSD as a result of your chronic health condition, you can enlist the support of family and friends, visit a place of worship, or seek professional help. If you are diagnosed with PTSD, treatments are available.



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