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Shwachman Diamond Syndrome UK. We are here to support UK patients and families affected by SDS. Providing forums for families, patients & medical professionals to connect. Promoting access to health and educational services & resources.
https://shwachman-diamond.org/support-outlets/
Support Outlets It is part of the Shwachman Diamond Syndrome Foundation’s mission to support patients and families. We strive to link SDS families through the internet and medical family conferences. We also provide families with the most recent medical information, share experiences and provide emotional support.
https://shwachman-diamond.org/
Shwachman-Diamond Syndrome Foundation is a national, not for profit, patient advocacy organization. Our goals are to advocate and fund research towards improved treatment and a cure. We provide educational services and emotional support to SDS families.
https://contact.org.uk/advice-and-support/medical-information/conditions/s/shwachman-diamond-syndrome/
There is no support group for Shwachman-Diamond syndrome in the UK. Families can use Contact a Family's freephone helpline for advice, information and, where possible, links to other families. Contact a Family's web-based linking service can be accessed at community.cafamily.org.uk
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2082808/
A syndrome associating exocrine pancreatic insufficiency with leucopenia was first described in 1961 by Nezelof and Watchi, 3 and later in 1964 by Shwachman et al 4 and Bodian et al. 5 When associated skeletal changes were observed by Burke et al in 1967 6 and Pringle et al in 1968, 7 the syndrome was re‐described as a triad of exocrine pancreatic insufficiency, bone marrow failure, and bony …Cited by: 32
https://shwachman-diamond.org/save-the-date-10th-international-sds-congress/
The dates for the 10th International Congress on Shwachman-Diamond Syndrome have been announced! Save the date for April 6-9, 2020 in Cambridge, UK. SDSF is an important sponsor for this meeting. Our funds help bring experts, researchers, and clinicians together to present and discuss research findings, treatment, and care of patients with SDS.
https://rarediseases.info.nih.gov/diseases/4863/shwachman-diamond-syndrome
59 rows · Jun 23, 2015 · Shwachman-Diamond syndrome is typically characterized by signs of …
https://shwachman-diamond.org/downloads/
Shwachman Diamond Syndrome Foundation Brochure A promotional brochure that explains SDS and the SDSF. SDS Glossary A medical glossary of all terms associated with Shwachman Diamond Syndrome. Draft Consensus Guidelines for Diagnosis and Treatment of Shwachman-Diamond Syndrome The medical guidelines for diagnosis and treatment of SDS.
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