Sotos Syndrome Support Uk

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Sotos Syndrome Support Association

    https://sotossyndrome.org/
    Sotos syndrome Support Association (SSSA) is made up of families, physicians, genetic counselors, and health care agencies throughout the United States. The SSSA is a non-profit organization which is incorporated in the state of Missouri. read more.

Welcome to the UK Sotos Syndrome site

    http://www.sotossyndrome.co.uk/
    Sotos Syndrome,Child Growth Foundation (CGF), the UK’s leading charity focusing on children’s growth and endocrine issues. As an independent charity, the CGF support children and adults with growth related problems, raise awareness of growth problems and educate health professionals in the management of these conditions: Russell Silver Syndrome (RSS), Sotos Syndrome, Turner Syndrome ...

Sotos syndrome Contact

    https://contact.org.uk/advice-and-support/medical-information/conditions/s/sotos-syndrome/
    Weaver syndrome is a condition characterised by accelerated growth, mild hypotonia (low muscle tone), loose skin, thin hair and camptodactyly (permanent immobility of a flexed finger joint). In the first years of life, Sotos syndrome may be misdiagnosed as Weaver syndrome. Some people with Sotos syndrome also have behavioural problems.

Contact Us Sotos Syndrome Support Association

    https://sotossyndrome.org/contact-us
    Contact Us. Sotos Syndrome Support Association P.O. Box 4626 Wheaton, IL 60189 888-246-SSSA (7772)

Sotos syndrome - Genetics Home Reference - NIH

    https://ghr.nlm.nih.gov/condition/sotos-syndrome
    Oct 29, 2019 · Sotos syndrome is reported to occur in 1 in 10,000 to 14,000 newborns. Because many of the features of Sotos syndrome can be attributed to other conditions, many cases of this disorder are likely not properly diagnosed, so the true incidence may be closer to 1 in 5,000.

Sotos Syndrome: An Educational Guide

    http://childgrowthfoundation.org/wp-content/uploads/2018/07/Sotos-Syndrome-Educational-Guide.pdf
    Sotos syndrome, language development is likely to be delayed for young children with Sotos syndrome. However, the majority of children with Sotos syndrome will develop language. Speech and language therapy may be helpful for language development, as well as support with communication skills. 9

Sotos syndrome - Wikipedia

    https://en.wikipedia.org/wiki/Sotos_syndrome
    Sotos syndrome is a rare genetic disorder characterized by excessive physical growth during the first years of life. Excessive growth often starts in infancy and continues into the early teen years. The disorder may be accompanied by autism, mild intellectual disability, delayed motor, cognitive, and social development, hypotonia (low muscle tone), and speech impairments.Other names: Cerebral gigantism or Sotos-Dodge …

Sotos Syndrome SEN Help SEN Expert Solicitors, Boyes Turner

    https://www.senexpertsolicitors.co.uk/site/services/services-for-parents/special-educational-needs-types/sotos-syndrome/
    Sotos syndrome is also known as cerebral gigantism in childhood. It is a rare genetic condition affecting approximately 1 in 25,000 children. Children with Sotos syndrome are generally significantly larger and heavier than average, caused by excessive growth before and after birth.

Sotos Syndrome - GeneReviews® - NCBI Bookshelf

    https://www.ncbi.nlm.nih.gov/books/NBK1479/
    Dec 17, 2004 · Clinical characteristics. Sotos syndrome is characterized by a distinctive facial appearance (broad and prominent forehead, sparse frontotemporal hair, downslanting palpebral fissures, malar flushing, long and narrow face, long chin); learning disability (early developmental delay, mild to severe intellectual impairment); and overgrowth (height and/or head circumference ≥2 SD above the …



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