Find all needed information about Spina Bifida Support Organizations. Below you can see links where you can find everything you want to know about Spina Bifida Support Organizations.
https://www.spinabifidaassociation.org/
The Spina Bifida Association mission is to promote the prevention of Spina Bifida and enhance lives through research, advocacy, education, and support.
https://rarediseases.org/organizations/spina-bifida-association-of-america/
The Spina Bifida Association (SBA) is a non-profit association dedicated to promoting the rights and well being of individuals with spina bifida. The association supports research into the causes, treatment, and prevention of the disease and seeks to increase public awareness of spina bifida and its prevention.
https://www.spinabifidaassociation.org/chapter/sbancsc/about/
The Spina Bifida Association of the Carolinas (SBANCSC) supports and connects communities in North and South Carolina. We put our mission into action in tangible ways – providing resources, aid, connections, and a strong voice on your behalf.
Spina Bifida Kansas City is one of the organizations that serves and supports the ever-growing needs of people with this condition. We actually are made up of both children and adults with Spina Bifida. There are also guardians, family, friends, healthcare providers, and other supporters.
https://www.parentcenterhub.org/spinabifida/
Jun 16, 2015 · Spina bifida occulta: In this mildest form of spina bifida, there’s a small defect or gap in one or more of the vertebrae (bones) of the spinal column. The defect may not be visible at birth and causes no harm. In fact, it’s estimated at 15% of healthy …
https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Spina-Bifida-Fact-Sheet
Mild cases of spina bifida (occulta, closed) not diagnosed during prenatal testing may be detected postnatally by plain film X-ray examination. Individuals with the more severe forms of spina bifida often have muscle weakness in their feet, hips, and legs that result in deformities that may be present at birth.
https://www.charitynavigator.org/index.cfm?bay=search.summary&orgid=9604
Spina Bifida Association is rated 3 out of 4 stars by Charity Navigator. Spina Bifida Association receives 82.11 out of 100 for their Charity Navigator rating. Spina Bifida Association is a Diseases, Disorders, and Disciplines charity located in Arlington, VA. The organization is run by Sara Struwe and has an annual revenue of $1,863,459.3/4
https://rarediseases.org/rare-diseases/spina-bifida/
The exact cause of spina bifida is not known. A combination of hereditary and environmental factors may be involved. Studies have also indicated that a lack of folic acid in the mother’s diet during pregnancy heightens the risk of spina bifida and other neural tube defects.
https://www.dailystrength.org/group/spina-bifida
Spina Bifida Support Group. Spina bifida describes birth defects caused by an incomplete closure of one or more vertebral arches of the spine, resulting in malformations of the spinal cord. The spinal membranes and spinal cord may protrude through the absence of vertebral arches (called clefts).
http://wmspinabifida.org/
Our organization strives to provide families affected by Spina Bifida a support system that fosters a strong sense of community, raises awareness of the condition, advocates for each unique individual’s highest level of independence, and creates partnerships that promote Spina Bifida in a positive light.
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