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SMA Support Inc., Home of Spinal Muscular Atrophy Dedicated to providing information, support and help for anyone facing the incurable genetic disease Spinal Muscular Atrophy (SMA). Learn about the disease, research, treatments, and life with the disease, speak with others in similar positions. Your browser does not support script
https://www.togetherinsma.com/en_us/home/living-with-sma/community.html
Biogen is working with a number of support organizations dedicated to individuals living with spinal muscular atrophy. Cure SMA provides a nationwide support system to the spinal muscular atrophy community. For those newly diagnosed, they offer a number of resources, including care packages, information packets, and a family support staff.
https://hcp.smanewstoday.com/psychological-support/
Psychological support for patients and families is a critical but often neglected component of care in Spinal Muscular Atrophy (SMA).1 Families will have psychological support needs that differ depending on where they are in their respective healthcare odysseys, from pre-conception genetic counseling2 to bereavement therapy.3 Patients with SMA themselves will have psychological needs …
Welcome to Spinal Muscular Atrophy UK. If you or someone in your family has SMA, and you live in the UK, you have come to the right place for support and information about the condition and the latest developments with new treatments. We have been supporting individuals, families …
https://www.dailystrength.org/group/spinal-muscular-atrophy-sma
Spinal Muscular Atrophy (SMA) Support Group Spinal Muscular Atrophy (SMA) is a term applied to a number of different disorders, all having in common a genetic cause and the manifestation of weakness due to loss of the motor neurons of the spinal cord and brainstem.
http://spinalmuscularatrophysupport.com/
The answer was the Ally Cadence Trust for Spinal Muscular Atrophy, a way to provide others with a simple, yet highly important, level of support that is often underestimated. Ally was a very happy little girl who never stopped smiling, she loved life and would be proud to have played her small part towards helping others love life too.
https://www.mda.org/disease/spinal-muscular-atrophy
Spinal muscular atrophy (SMA) is a genetic disease affecting the part of the nervous system that controls voluntary muscle movement. Most of the nerve cells that control muscles are located in the spinal cord, which accounts for the word spinal in the name of the disease.
https://www.webmd.com/a-to-z-guides/spinal-muscular-atrophy
Spinal muscular atrophy (SMA) most often affects babies and children and makes it hard for them to use their muscles. When your child has SMA, there's a breakdown of the nerve cells in the brain and spinal cord. The brain stops sending messages that control muscle movement.
Cure SMA provides support to patients and families affected by spinal muscular atrophy and funds and directs research leading the way to a cure for SMA. Cure SMA provides support to patients and families affected by spinal muscular atrophy and funds …
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