Sydrome Support

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Local Support - NDSS

    https://www.ndss.org/resources/local-support/
    Local Support. NDSS has more than 375 local Down syndrome organizations that provide an array of benefits to help better service the Down syndrome community in their local area. We view our local partners as equal organizations working on behalf of individuals with Down syndrome, their families, and the professionals involved with their overall ...

Sotos Syndrome Support Association

    https://sotossyndrome.org/
    Sotos syndrome Support Association (SSSA) is made up of families, physicians, genetic counselors, and health care agencies throughout the United States. The SSSA is a non-profit organization which is incorporated in the state of Missouri. read more.

Local Down Syndrome Organizations Global Down Syndrome ...

    https://www.globaldownsyndrome.org/about-down-syndrome/resources/local-organizations/
    Click a state to get a list of known Down syndrome organizations for that state: Alabama Alaska Arizona Arkansas California Colorado Connecticut Delaware District of Columbia Florida Georgia Guam Hawaii Idaho Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana Nebraska Nevada New Hampshire New Jersey New Mexico …

Noonan Syndrome Foundation

    https://www.teamnoonan.org/
    The Noonan Syndrome Foundation is an organization that was created to help support, educate, and advocate for and on behalf of all those who have bee affected by Noonan Syndrome. Did you know that the entire foundation is run by volunteers of which nobody is paid a salary for their efforts?

Apert Syndrome Support Group - NORD (National Organization ...

    https://rarediseases.org/organizations/apert-syndrome-support-group/
    The Apert Syndrome Support Group (ASSG) is a voluntary, non-profit, self-help organization dedicated to providing information and support to families of children with Apert syndrome. Apert syndrome is a rare genetic disorder characterized by premature closure of the fibrous joints between certain bones of the skull, fusion or webbing of the ...

Piedmont Down Syndrome Support Network Support ...

    https://pdssn.org/
    Support - Information - Advocacy

CT Zebras

    http://www.edsct.com/
    Ehlers-Danlos Sydrome Support, Awareness, Camaraderie & Education. About. CT Zebras is an Ehlers-Danlos & Marfan Syndrome awareness and support group for adults and children with EDS, Marfan Syndrome and other related disorders, who live in CT, NY, RI and MA. Family, friends and providers are encouraged and welcome to attend meetings.

Burning Mouth Syndrome Support Group - Drugs.com

    https://www.drugs.com/answers/support-group/burning-mouth-syndrome/
    Ask questions and get answers about Burning Mouth Syndrome. Our support group helps people share their own experience. 70 questions, 306 members.

Mast Cell Activation Syndrome Community Public Group ...

    https://www.facebook.com/groups/MastCell/
    Mast Cells Activation Syndrome (MCAS) is a one of the most complex diagnoses on the planet. This group is a place for MCAS collaborative learning and educational discussions for MCAS patients,...

Tourette Syndrome & Tic Disorders Support Groups Online ...

    https://www.dailystrength.org/group/tourette-syndrome-tic-disorders
    Tourette Syndrome & Tic Disorders Support Group. This community is dedicated to those afflicted with a tic disorder. A tic disorder is one in which uncontrollable muscle spasms that can range from small annoyances to major disruptive occurrences. .



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