Tay Sachs Disease Support

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NTSAD - Support

    https://www.ntsad.org/index.php/find-support
    Caring for a child withTay-Sachs, Sandhoff, GM1 or Canavan Disease Tay-Sachs, Sandhoff, GM1 and Canavan diseases are known as progressive ... A Family Gathering The NTSAD Annual Family Conference is the cornerstone of our exceptional Family Support Services.

NTSAD - Home

    https://www.ntsad.org/
    NTSAD provides family services, research, and education for Tay-Sachs, GM-1, Sandhoff, and Canavan. Join our cause to wipe out these genetic diseases.

Organizations: Are there good support groups for Tay-Sachs ...

    https://www.thinkgenetic.com/diseases/tay-sachs-disease/organizations/42441
    There are several support groups or organizations for Tay-Sachs disease that provide support, information, advice, referrals to physicians and medical centers, and up …

The CATS Foundation – Cure and Action for Tay-Sachs

    https://www.cats-foundation.org/
    The CATS Foundation was established in June 2011 by Daniel and Patricia Lewi. Their daughter Amelie was diagnosed with Tay-Sachs at fifteen months of age in March 2011 and at the time there was no UK based charity dedicated to providing support for families affected by Tay-Sachs or Sandhoff disease.

Tay-Sachs disease - Genetics Home Reference - NIH

    https://ghr.nlm.nih.gov/condition/tay-sachs-disease
    Oct 01, 2019 · Tay-Sachs disease is a rare inherited disorder that progressively destroys nerve cells (neurons) in the brain and spinal cord.. The most common form of Tay-Sachs disease becomes apparent in infancy. Infants with this disorder typically appear normal until the age of 3 to 6 months, when their development slows and muscles used for movement weaken.

Tay-Sachs Disease Support Group - MDJunction

    https://www.mdjunction.com/tay-sachs-disease
    The Tay-Sachs Disease Support Group is a community of patients, family members and friends dedicated to dealing with Tay-Sachs Disease, together.

Tay-Sachs disease - NHS

    https://www.nhs.uk/conditions/Tay-Sachs-disease/
    Rarer types of Tay-Sachs disease start later in childhood (juvenile Tay-Sachs disease) or early adulthood (late-onset Tay-Sachs disease). The late-onset type doesn't always shorten life expectancy. How it's inherited. Tay-Sachs disease is caused by a problem in a child's genes that means their nerves stop working properly.



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