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https://www.ehlers-danlos.org/
Ehlers-Danlos Support UK mentioned in parliamentary debate. Following Healthwatch Calderdale’s report into the experiences of adults with hypermobility syndromes published in July, the MP for Calder Valley, Craig Whittaker tabled a debate in parliament on Monday 7 October highlighting the findings of the report and calling for action.
https://www.ehlers-danlos.org/support/
Support is in the very fabric of what we do, so much so we even put it in our name. We run the only helpline in the UK specifically to help anybody touched by EDS and at a local level, our network of volunteers run local support groups and regional facebook pages to help families, friends and patients.. More regularly we are hearing stories from members about the difficulty they are having ...
https://www.ehlers-danlos.com/support-groups-uk/
Sussex Ehlers-Danlos Syndrome and Hypermobility support community group actively supports members with or without EDS/HSD diagnosis in Sussex. We will run Pilates classes, craft sessions, run informational and professional speaking events, campaign and advocate on accessibility to transport from trains and ferries to aviation.
https://www.ehlers-danlos.com/virtual-support/
Our virtual support groups for people from all over the world are a chance to come and share your story and chat with others for support. Meetings are facilitated by staff from The Ehlers-Danlos Society.
https://www.ehlers-danlos.org/support/support-groups/
Breaking down barriers. Breaking down Barriers is a project EDS UK have been working on since January 2017. Funded by the Sylvia Adams Trust, the project aims to extend genetic services to the south Asian community, who are known to have a higher prevalence of the Ehlers-Danlos Syndromes.
https://www.ehlers-danlos.com/support-groups/
Support Groups and Charities We are about to start updating our support group network, and have been trying to reach groups through available contact information. Please watch your email or this page for information on being part of the new listings.
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/hypermobile-eds-and-hypermobility-spectrum-disorders/
Hypermobile Ehlers-Danlos syndrome (hEDS), which used to be known as the hypermobility type or type 3, is thought to be the most common genetic connective tissue disorder. There is no up-to-date research to tell us exactly how frequently it occurs.
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