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Support and resources for people with Klippel-Trenaunay Syndrome and related conditions. ... Klippel-Trenaunay Syndrome and related conditions. from our member album: 2016 Rochester Meeting. Highlights from 2018 K-T Support Group Conference Click here for conference photo album. Adult Patient Care Transition Survey for Transition to Adult Care.
https://rarediseases.info.nih.gov/organizations/402
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https://rarediseases.org/organizations/klippel-trenaunay-support-group/
The Klippel-Trenaunay Support Group is a voluntary, self-help organization dedicated to providing support for individuals affected with Klippel-Trenaunay syndrome and their families. Klippel-Trenaunay syndrome is a rare congenital disorder characterized by the presence of a port-wine stain on the skin, excessive growth of the soft tissues and/or bones, venous malformations, and lymphatic abnormalities.
https://healthfinder.gov/FindServices/Organizations/Organization.aspx?code=HR2535
The Klippel-Trenaunay Syndrome Support Group's mission is to provide support for K-T Syndrome patients and their families.
https://rarediseases.info.nih.gov/diseases/3122/klippel-trenaunay-weber-syndrome
50 rows · May 23, 2017 · Klippel-Trenaunay syndrome (KTS) is a syndrome that affects the …
https://healthjade.net/klippel-trenaunay-syndrome/
Klippel-Trenaunay syndrome causes, diagnostic features, radiology, life expectancy, prognosis, treatment. Klippel-Trenaunay syndrome is almost always sporadic, which means that it occurs in people with no history of the disorder in their family.
https://www.facebook.com/groups/64987887844/
Klippel Trenaunay Weber Syndrome (KTWS) Support Group has 2,898 members. ***PLEASE NOTE - This group is set to PUBLIC*** Klippel Trenaunay syndrome...
https://ghr.nlm.nih.gov/condition/klippel-trenaunay-syndrome
Oct 01, 2019 · Klippel-Trenaunay syndrome is a condition that affects the development of blood vessels, soft tissues (such as skin and muscles), and bones. The disorder has three characteristic features: a red birthmark called a port-wine stain, abnormal overgrowth of …
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