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SOFT has provided trisomy 18 & trisomy 13 information, resources, support and an annual conference to families since 1980.
https://www.trisomy18.org/
Usually diagnosed in pregnancy, Trisomy 18 steals many dreams, but the Trisomy 18 Foundation helps parents create new dreams for their child and for their families. Hope is at the heart of the Trisomy 18 Foundation—we represent the hope that those lost to Triso my 18 will never be forgotten, that those who face Trisomy 18 will be supported, and that one day Trisomy 18 will be eliminated.
https://rarediseases.info.nih.gov/organizations/297
Support Organization for Trisomy 18, 13, and Related Disorders (SOFT) Support Organization for Trisomy 18, 13, and Related Disorders (SOFT)
https://rarediseases.org/organizations/support-organization-for-trisomy-18-13-and-related-disorders/
The Support Organization for Trisomy 18, 13, and Related Disorders (SOFT) is a voluntary, non-profit network consisting of affected families and professionals who are involved in the care of individuals with trisomy 18, trisomy 13, and other related disorders (e.g., other chromosomal abnormalities involving the duplication of genetic material).
https://healthfinder.gov/FindServices/Organizations/Organization.aspx?code=HR2572
Support Organization for Trisomy 18, 13 and Related Disorders (SOFT) is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in trisomy 18, 13, and related chromosomal disorders.
https://www.diseaseinfosearch.org/organization/view/350
SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and related chromosomal disorders. Support can be provided during prenatal diagnosis, the child's life and after the child's passing.
https://www.guidestar.org/profile/94-2781004
GuideStar connects donors and grantmakers to non-profit organizations. Support Organization for Trisomy 18/13 - S O F T Inc - GuideStar Profile Skip to main contentLocation: ROCHESTER , NY 14624
https://www.facebook.com/Trisomy18.Trisomy13.Awareness.SOFTrelatedDisorders
about soft - support organization for trisomy 18, 13, and related disorders Our Story SOFT was created to provide hope, information, and education to families and medical professionals....4.8/5(24)
https://www.guidestar.org/profile/77-0600393
The mission of the Trisomy 18 Foundation is to improve the health outcomes of families who receive a Trisomy 18 diagnosis for their child through national leadership in accelerating progress in biomedical research, patient education, family support, and advocacy.
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