Trisomy 18 Support Uk

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SOFT UK - Support Organisation for Trisomy 13 and Trisomy 18

    https://www.soft.org.uk/
    About Soft UK. SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

Trisomy 18 Support at Trisomy 18 Foundation

    https://www.trisomy18.org/
    Trisomy 18 is a life-threatening disorder that impacts about 1 out of every 2000 pregnancies in the U.S. Usually diagnosed in pregnancy, Trisomy 18 steals many dreams, but the Trisomy 18 Foundation helps parents create new dreams for their child and for their families.

trisomy

    https://trisomy.org/other-trisomy-18-or-13-supportgroups/
    South Africa: A contact point for families affected by Trisomy 18 in South Africa, is found at www.trisomy18.org.za United Kingdom – Trisomy 18-13 Support United Kingdom– SOFT UK United Kingdom – Unique, Understanding Rare Disorders. United States-SOFT USA SOFT USA also welcomes members from other countries. The contact for SOFT USA ...

Edwards' syndrome (trisomy 18) - NHS

    https://www.nhs.uk/conditions/edwards-syndrome/
    Edwards' syndrome, also known as trisomy 18, is a rare but serious genetic condition that causes a wide range of severe medical problems. Sadly, most babies with Edwards' syndrome will …

Trisomy 18, Trisomy 13 information has been provided for ...

    https://trisomy.org/
    SOFT has provided trisomy 18 & trisomy 13 information, resources, support and an annual conference to families since 1980. Skip to content. Trisomy 18, Trisomy 13 and Related Disorders. SOFT is a primary source of information about Trisomy, Care Management and Family Support. Menu.

Support Organization for Trisomy 13/18 and Related ...

    https://rarediseases.org/organizations/support-organization-for-trisomy-1318-and-related-disorders-uk/
    The Support Organisation for Trisomy 13/18 and Related Disorders (SOFT UK) is an international, UK-based organization that serves families affected by trisomy 13/18, related disorders, and rare conditions for whom no other organization exists.

TRISOMY 18 SUPPORT INC - GuideStar Profile

    https://www.guidestar.org/profile/77-0600393
    Trisomy 18 Foundation . . . Accelerating Research. Empowering Families. The mission of the Trisomy 18 Foundation is to improve the health outcomes of families who receive a Trisomy 18 diagnosis for their child through national leadership in accelerating progress in biomedical research, patient education, family support, and advocacy.

Trisomy 18: description in brief - GOV.UK

    https://www.gov.uk/government/publications/trisomy-18-description-in-brief
    Trisomy 18 is a condition screened for by the combined fetal anomaly screening test. ... where more support and information is available; ... To help us improve GOV.UK, we’d like to know more ...Author: Public Health England

Supporting and Advocating Life for Trisomy 13, 18, 21 and ...

    https://trisomynetwork.com/
    Jan 19, 2019 · Support Organization for Trisomy 18, 13, and Related Chromosome Disorders SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other related chromosomal disorders.



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