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SOFT UK provides information and support to families affected by Trisomy 13 (Patau's Syndrome) and Trisomy 18 (Edwards' Syndrome) and to associated professional SUPPORT FOR FAMILIES DONATE Contact Us Today
https://rarediseases.org/organizations/support-organization-for-trisomy-1318-and-related-disorders-uk/
The Support Organisation for Trisomy 13/18 and Related Disorders (SOFT UK) is an international, UK-based organization that serves families affected by trisomy 13/18, related disorders, and rare conditions for whom no other organization exists.
https://www.trisomy18.org/
Trisomy 18 is a life-threatening disorder that impacts about 1 out of every 2000 pregnancies in the U.S. Usually diagnosed in pregnancy, Trisomy 18 steals many dreams, but the Trisomy 18 Foundation helps parents create new dreams for their child and for their families.
https://trisomy.org/other-trisomy-18-or-13-supportgroups/
The mission is to offer trisomy 13 and trisomy 18 support groups, physicians and other professionals, accurate information to enable parents to make informed decisions on behalf of their children, and to be a mechanism for sharing between groups. ITA offers a series of booklets for families, which are offered in a variety of languages.
https://www.internationaltrisomyalliance.com/trisomy-support-groups.html
Trisomy Support Groups Hover over the links below for information, and click the link to visit the website, or email if there is no website. Please note, however, that we have no control over the nature, content or availability of those sites.
https://trisomynetwork.com/
Jan 19, 2019 · Support Organization for Trisomy 18, 13, and Related Chromosome Disorders SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other related chromosomal disorders.
http://trisomy18-13supportuk.com/
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https://rarediseases.info.nih.gov/diseases/43/mosaic-trisomy-9
Jan 18, 2015 · Mosaic trisomy 9 is a chromosomal abnormality that can affect may parts of the body. In people affected by this condition, some of the body's cells have three copies of chromosome 9 (trisomy), while other cells have the usual two copies of this chromosome.The signs and symptoms vary but may include mild to severe intellectual disability, developmental …
SOFT has provided trisomy 18 & trisomy 13 information, resources, support and an annual conference to families since 1980. Skip to content. Trisomy 18, Trisomy 13 and Related Disorders. SOFT is a primary source of information about Trisomy, Care Management and Family Support. Menu.
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