Turner Syndrome Support Organizations

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Turner Syndrome Society of the United States Local Groups

    https://www.turnersyndrome.org/local-groups
    A Resource Group is a volunteer-led group that offers Turner syndrome (TS) resources and support to those touched by TS, within a specific geographical location. The goal of a resource group is to connect people who are experiencing similar situations. Participants of TS resource groups come together to share their stories,...

Home Turner Syndrome Foundation

    https://turnersyndromefoundation.org/
    The goal of the Turner Syndrome Foundation (TSF) is to support research initiatives and facilitate education programs that increase professional awareness and enhance medical care of those affected by Turner syndrome. TSF is a registered 501(c)(3) nonprofit organization.

The Turner Syndrome Society of the United States

    https://www.turnersyndrome.org/
    The Turner Syndrome Society of the United States is proud that our co-leadership role in the Turner Resource Network and the TS Professisional Symposium results in advancing knowledge and informing research for the TS community.

Organizations: Are there good support groups for Turner ...

    https://www.thinkgenetic.com/diseases/turner-syndrome/organizations/42777
    There are a few support groups or organizations for Turner syndrome. These groups provide support, information, advice, referrals to physicians and medical centers, and up-to-date information on research and treatments. Support groups for Turner syndrome include the Turner Syndrome Society of the United States,...

Turner Syndrome Support Groups Online DailyStrength

    https://www.dailystrength.org/group/turner-syndrome
    Turner Syndrome Support Group Turner syndrome encompasses a number of chromosomal abnormalities, of which monosomy X, is the most common. It occurs in 1 out of every 2,500 female births.

Turner Syndrome Society of the United States - NORD ...

    https://rarediseases.org/organizations/turner-syndrome-society-of-the-united-states/
    In addition, the organization supports ongoing medical research and enables individuals with Turner syndrome to exchange information, support, and resources through its networking program. The Turner Syndrome Society also offers a variety of educational materials including a regular newsletter, audiovisual aids and brochures.



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