Find all needed information about Websites Genetic Disorders Support. Below you can see links where you can find everything you want to know about Websites Genetic Disorders Support.
https://rarediseases.info.nih.gov/guides/pages/120/support-for-patients-and-families
General Support Groups: Some nonprofit advocacy groups focus on a symptom that may have many different causes, such as vision loss or developmental disabilities. Other groups may focus on a part of the body or a body system, such as the liver or the immune system.
https://www.rarechromo.org/
Unique is a small charity supporting, informing and networking with families living with a Rare Chromosome Disorder or some Autosomal Dominant Single Gene Disorders associated with learning disability and developmental delay, among other symptoms. Sound like your family? Do take time to explore our site, especially the Families area.
https://chromodisorder.org/
Chromosome Disorder Outreach, Inc is a non-profit organization. Founded, supported, and run by parents just like you, for over 28 years CDO has been supporting those born with rare chromosome and gene mutation disorders.
http://www.kumc.edu/gec/support/
Links to lay advocacy and support groups, clinics with genetic counselors and geneticists, sites for children and young adults. Maintained by Medical Genetics, University of Kansas Medical Center Genetic and Rare Conditions Site
https://rarediseases.org/organizations/unique-rare-chromosome-disorder-support-group/
The UNIQUE - The Rare Chromosome Disorder Support Group is a non-profit, voluntary organization dedicated to promoting awareness of rare chromosomal abnormalities. The organization was founded in 1984 and served as a source of support and information for anyone affected by …
The Association for X and Y Chromosome Variations (AXYS) is dedicated to addressing the needs of those affected by one or more extra X and/or Y chromosomes. We are focused on sharing knowledge, offering support, and initiating action to help improve lives of individuals and families.
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