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https://www.webmd.com/children/west-syndrome-support
Continued How to Get Support. Parents of children with West syndrome can find -- or give -- help via the Infantile Spasms Project, an online forum run by the David Geffen School of Medicine at the ...Author: Terri D'arrigo
https://www.facebook.com/groups/122838701073070/
West Syndrome/Infantile Spasms Support group has 593 members. I have created this group as I have a little girl who has West Syndrom, I have found it...
https://contact.org.uk/advice-and-support/medical-information/conditions/w/west-syndrome/
Background. West syndrome is the term used to describe a type of epilepsy which most typically starts in the first year of life, between four and 8 months of age. It may, however, start younger than this. Credits. Medical text written November 2002 by Dr J Livingston, Consultant Paediatric Neurologist, Leeds General Infirmary, Leeds, UK.
https://rarediseases.org/rare-diseases/west-syndrome/
West syndrome is a rare neurological syndrome that can affect males and females. The X-linked form of West syndrome affects males more often than females. West syndrome has been estimated to affect .31 per 1000 live births in the United States. West syndrome accounts for approximately 30 percent of all cases of epilepsy affecting infants.
https://rarediseases.info.nih.gov/diseases/7887/west-syndrome
Jun 09, 2017 · West syndrome is characterized by a specific type of seizure (infantile spasms) seen in infancy and childhood.This syndrome leads to developmental regression and causes a specific pattern, known as hypsarrhythmia (chaotic brain waves), on electroencephalography (EEG) testing. The infantile spasms usually begin in the first year of life, typically between 4-8 months.
https://www.webmd.com/children/west-syndrome-symptoms
The main symptoms of infantile spasms, also called West syndrome, are seizures and spasms. They don’t last very long -- only a few seconds. They happen in clusters.Author: Terri D'arrigo
Annual membership can now be paid via MembershipMojo.co.uk. Click the button below. Active membership is £10 per family, giving funded access to events and activities for the person with Down's Syndrome and one other.
https://syndromespedia.com/west-syndrome-symptoms-treatment-life-expectancy.html
According to medical records, this type of syndrome is diagnosed in one among 3000 children. The condition of west syndrome generally arises due to the combination of three different conditions of infantile spasms, an interictal electroencephalogram (EEG) …
https://www.uptodate.com/contents/management-and-prognosis-of-infantile-spasms
Kurokawa T, Goya N, Fukuyama Y, et al. West syndrome and Lennox-Gastaut syndrome: a survey of natural history. Pediatrics 1980; 65:81. Weinmann HM. Lennox-Gastaut syndrome and its relationship to infantile spasms (West syndrome). In: The Lennox-Gastaut syndrome, Niedermeyer E, Degen R (Eds), Alan R Liss, New York 1988. p.301.
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