Williams Syndrome Support Organizations

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Williams Syndrome Association

    https://williams-syndrome.org/
    Held Biennially, our National Conventions (next in Phoenix in 2020) and International Professional Conferences bring together the foremost experts on Williams syndrome and related characteristics to discuss the latest research findings, medical treatments and educational strategies.

Organizations: Are there good support groups for people ...

    https://www.thinkgenetic.com/diseases/williams-syndrome/organizations/18421
    Where do I find other people with Williams syndrome? How do I start a support group for people with Williams syndrome? Are there other names for Williams syndrome? Is the gene change that causes Williams syndrome a predisposition or a cause? What is the usual abbreviation for Williams syndrome?

Community/WSA Regions Williams Syndrome Association

    https://www.williams-syndrome.org/communitywsa-regions
    WSA RegionsThe Williams Syndrome Assocation is organized into 19 regions across the United States. Each region works to provide resource information and social and educational opportunities to its members.In the WSA regional area links, you will find names of your regional chairs (parents who can provide resources and information), e-mails and phone numbers as well as separate

Williams Syndrome Support Groups Online DailyStrength

    https://www.dailystrength.org/group/williams-syndrome
    Williams Syndrome Support Group Williams syndrome is a rare genetic disorder characterized by a distinctive, "elfin" facial appearance, an unusually cheerful demeanor, ease with strangers, a love for music, and cardiovascular problems.

Support group for Adults with Williams Syndrome Williams ...

    https://williams-syndrome.org/supportgroup2016
    Les Paul Morgan: 803-426-6356 or [email protected] You're invited to join Megan Gates, an adult with WS as she hosts her first support group. There will …

Williams Syndrome Association - NORD (National ...

    https://rarediseases.org/organizations/williams-syndrome-association/
    The Williams Syndrome Association (WSA) is a national, voluntary, non-profit organization dedicated to improving the lives of individuals with Williams syndrome, a rare congenital disorder characterized by heart and blood vessel abnormalities, developmental delays, characteristic facial features, and/or additional abnormalities.

Other non-WSA resources and international resources ...

    https://williams-syndrome.org/content/resources-outside-wsa
    Genetic/Rare conditions - national resources Organizations, support groups and information on genetic and rare conditions. Family Village Home Page This site also contains a Williams syndrome discussion board. Go to the discussion board here. Special educational organizations and …

Williams Syndrome Support Group for Parents - Care.com ...

    https://www.care.com/c/for/williamssyndrome
    The Kinsights Williams syndrome group is a safe and secure online community to get answers from parents, mentors, and experts on Williams syndrome and connect with parents who can relate. How we can help There is much more to managing your child’s Williams syndrome than going to the doctor and having regular checkups.

Welcome to The Canadian Association for Williams Syndrome

    https://www.williamssyndrome.ca/
    The Canadian Association for Williams Syndrome (CAWS) provides support to Williams syndrome individuals, their families and caregivers, coast-to-coast. Our grassroots, parent-volunteer run organization is on a mission to spread awareness, raise funds, support research and connect families touched by Williams syndrome.

What is Williams Syndrome? Williams Syndrome Association

    https://williams-syndrome.org/what-is-williams-syndrome
    As adults, most people with Williams syndrome will need supportive housing to live to their fullest potential. Many adults with WS contribute to their communities as volunteers or paid employees; often working at assisted living homes for senior citizens, hospitals and libraries, or …



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