Find all needed information about Adrenoleukodystrophy Support. Below you can see links where you can find everything you want to know about Adrenoleukodystrophy Support.
https://www.adrenoleukodystrophysupport.org/
14 rows · Adrenoleukodystrophy (ALD) is a rare, genetic disorder that leads to brain damage and failure of the adrenal glands. It affects the body’s nervous system, causing the weakening and failure of the nerve impulse; thus leading to disability.
https://ghr.nlm.nih.gov/condition/x-linked-adrenoleukodystrophy
Oct 29, 2019 · X-linked adrenoleukodystrophy is a genetic disorder that occurs primarily in males. It mainly affects the nervous system and the adrenal glands, which are small glands located on top of each kidney.In this disorder, the fatty covering (myelin) that insulates nerves in the brain and spinal cord is prone to deterioration (demyelination), which reduces the ability of the nerves to relay ...
https://www.aldfoundation.org/
Show Your Support. Adrenoleukodystrophy, or ALD, is a genetically determined neurological disorder that affects 1 in every 17,900 boys worldwide. The presentation of symptoms occurs somewhere between the ages of 4 and 10, and affects the brain with demyelination.
https://www.myelin.org/ald-adrenoleukodystrophy/
Adrenoleukodystrophy (also known as X-linked adrenoleukodystrophy, ALD) is a rare, genetic disorder characterized by the breakdown or loss of myelin – the fatty covering surrounding nerve cells in the brain – and progressive dysfunction of the adrenal gland. As an X-linked disorder, ALD presents most commonly in males and occurs in about one out of every 17,000 births.
https://bethematch.org/patients-and-families/about-transplant/diseases-treated-by-transplant/adrenoleukodystrophy--ald-/
What is adrenoleukodystrophy (ALD)? ALD is a disease you’re born with that affects metabolism. ALD is sometimes called a storage disease. Metabolism is how the body breaks down food into energy. In ALD, the body is missing an important protein (enzyme) to break down fat-based substances.
https://medlineplus.gov/ency/article/001182.htm
Adrenoleukodystrophy is usually passed down from parent to child as an X-linked genetic trait. It affects mostly males. Some women who are carriers can have milder forms of the disease. It affects about 1 in 20,000 people from all races. ... Support Groups. The following resources can provide more information on adrenoleukodystrophy:
https://www.thinkgenetic.com/diseases/adrenoleukodystrophy/organizations/18461
There are multiple support groups for X-linked adrenoleukodystrophy. Some of these groups include the Adrenoleukodystrophy Foundation, ALD Connect, ALD Life, the Myelin project, and the United Leukodystrophy Foundation.All of these support groups have an online presence.
https://www.itmightbeald.com/support-resources
Offer additional support to the families of children with ALD or cerebral ALD by connecting them with some of the following advocacy groups. This list is provided for reference only and is not intended as a comprehensive list of resources.
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