Beckwith Wiedemann Support

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Beckwith Wiedemann Support Group Beckwith Wiedemann ...

    https://www.bwssupport.com/
    We provide information about Beckwith Wiedemann Syndrome, links with other families and a network of support. The Beckwith-Wiedemann Syndrome Support Group was started in 1990 by a group of parents with BWS children to share problems and information and to act as a self-help group.

Beckwith-Wiedemann syndrome - Genetics Home Reference - NIH

    https://ghr.nlm.nih.gov/condition/beckwith-wiedemann-syndrome
    Oct 29, 2019 · Beckwith-Wiedemann syndrome is a condition that affects many parts of the body. It is classified as an overgrowth syndrome, which means that affected infants are considerably larger than normal (macrosomia) and tend to be taller than their peers during childhood.

Beckwith Wiedemann Children's Foundation Int'l BWCFI

    https://www.beckwithwiedemann.org/
    Beckwith-Wiedemann Children’s Foundation Int’l (BWCFI) has been educating and assisting families diagnosed with BWS since 1998. Our mission is to provide correct information about BWS –at the initial diagnosis and throughout the child’s life.

Beckwith-Wiedemann Syndrome Resources Children's ...

    https://www.chop.edu/conditions-diseases/beckwith-wiedemann-syndrome/health-resources
    Beckwith-Wiedemann Syndrome Coloring Book [PDF]. Developed through conversations with families of children with Beckwith-Wiedemann Syndrome (BWS), this coloring book includes simple illustrations and easy-to-understand descriptions of the genetic and epigenetic causes of …

Beckwith-Wiedemann Syndrome Children's Hospital of ...

    https://www.chop.edu/conditions-diseases/beckwith-wiedemann-syndrome
    Beckwith-Wiedemann syndrome is a genetic disorder commonly characterized by overgrowth. The severity of this disorder varies widely in children and is usually recognized at birth, when a child is born with several features of Beckwith-Wiedemann syndrome.

Beckwith-Wiedemann syndrome Genetic and Rare Diseases ...

    https://rarediseases.info.nih.gov/diseases/3343/beckwith-wiedemann-syndrome
    85 rows · Nov 29, 2017 · Beckwith-Wiedemann syndrome (BWS) is a growth disorder that can affect …

Beckwith-Wiedemann Syndrome - GeneReviews® - NCBI Bookshelf

    https://www.ncbi.nlm.nih.gov/books/NBK1394/?report=printable
    Mar 03, 2000 · Initial Posting: March 3, 2000; Last Update: August 11, 2016. No consensus clinical diagnostic criteria for Beckwith-Wiedemann syndrome (BWS) exist. Beckwith-Wiedemann syndrome (BWS) should be suspected in individuals who have one or more of the following major and/or minor findings. Three major or ...

Beckwith Wiedemann Syndrome Public Group Facebook

    https://www.facebook.com/groups/78357624606/
    Beckwith Wiedemann Syndrome has 5,276 members. ***please answer the joining questions when requesting to join page. Unanswered question requests will be...

Beckwith-Wiedemann syndrome (BWS) Great Ormond Street ...

    https://www.gosh.nhs.uk/conditions-and-treatments/conditions-we-treat/beckwith-wiedemann-syndrome-bws
    Beckwith-Wiedemann syndrome (BWS) is a congenital (present at birth) overgrowth syndrome that occurs in approximately one in 15,000 births. This information from Great Ormond Street Hospital (GOSH) explains the causes, symptoms and treatment of BWS and where to get help.



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