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http://www.debra-international.org/homepage.html
Welcome to DEBRA International.We are the umbrella organisation for a worldwide network of national groups that work on behalf of those affected by the rare genetic skin …
https://www.niams.nih.gov/health-topics/epidermolysis-bullosa
Living with epidermolysis bullosa. Coping with the symptoms of epidermolysis bullosa can be difficult. You do not have to handle the disease alone. There are doctors, nurses, social workers, clergy members, psychologists, dietitians (people who study food and nutrition), and support groups that can help. Preventing blisters.
https://rarediseases.info.nih.gov/diseases/6359/epidermolysis-bullosa
Apr 18, 2018 · Epidermolysis bullosa (EB) is a group of genetic skin diseases that cause the skin to blister and erode very easily. In people with EB, blisters form in response to minor injuries or friction, such as rubbing or scratching.[2310] There are four main types of EB, which are classified based on the depth, or level, of blister formation: Epidermolysis bullosa simplex
The Dystrophic Epidermolysis Bullosa Research Association of America (debra), the only national non-profit dedicated to funding research and providing services and programs for those with Epidermolysis Bullosa, EB - 'the worst disease you've never heard of.' Founded 1980 …
https://rarediseases.org/rare-diseases/epidermolysis-bullosa/
Epidermolysis bullosa is divided into four subdivisions, and each subdivision has subtypes. Epidermolysis bullosa simplex (EBS) is usually dominantly inherited, and involves disorders of the genes for Keratins 5 and 14 and plectin. Recently, several suprabasal types of EBS have been described as well.
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