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Seventy-five percent (75%) of money raised will be used to support CCHS research. Twenty percent (20%) will be applied to the educational outreach plan of the CCHS Network. Five percent (5%) will be directed to the Ellen Coates Whisman Fund to provide scholarships to CCHS families wishing to attend CCHS educational conferences.
https://rarediseases.org/cchs-foundation/
Dec 15, 2015 · The CCHS Family Network (CCHSFN) is a voluntary, non-profit, self-help organization dedicated to providing support and information to families with children affected by congenital central hypoventilation syndrome.
https://christianacare.org/
Restricción de visitantes durante la Temporada de Influenza (Flu) Temporalmente solo se permiten los visitantes mayores de 16 años. Como una organización que promueve la seguridad ante todo, ChristianaCare está implementando una restricción temporal en la …
http://cchspa.org/support/
The PA depends on your tax-deductible donations to support our class activities and programming. Please consider donating to the PA. Donations can be made during our annual appeal or any time! Additionally, the PA sells the CCHS Family Directory to connect families in our CCHS community and to bolster fundraising efforts.
http://cchspa.org/category/support/shop/
Get to know other families at CCHS and support the CCHS Parents Association by purchasing the 2018-19 CCHS Family Directory! Copies are $30, $10 for additional copies.
https://www.guidestar.org/profile/22-3634814
The CCHS Family Network is a non-profit, tax-exempt organization registered in the United States. Our efforts focus primarily on education and support of our families and CCHS patients, inter-family and family-physician communication, and supporting and facilitating CCHS research.
http://www.ccsdre1.org/parent_resources/family_support_resources
Safe2Tell: Anonymously report anything that concerns or threatens you, your friends, your family or your community Jefferson Center for Mental Health: Individual and Family Mental Health Support Services Colorado Crisis Services: Call 1-844-493-8255 or Text "TALK" to 38255 for support with mental health, substance use or emotional crisis.This is a 24/7 service.
https://www.centralcatholic.net/support-cchs/corporate-community-partners
FACTS arrives at a “calculated need” in light of family size, income, expenses and tuition cost CCHS’ financial aid committee evaluates data and decides on the tuition assistance award Renewal of aid is based on annual assessment of family need & student’s academic progress
https://www.ssa.gov/ndf/documents/E%20Yang%20-%20CCHS.pdf
•CCHS is a RARE lifelong congenital multi-system condition that requires medical assistance/support •Affects multiple systems resulting in multiple co-morbidities •Addition to the list of compassionate allowances condition would benefit the CCHS patients and families CCHS is a lifelong congenital condition requiring medical assistance
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