Congenital Heart Disease Parent Support

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Links to Other Congenital Heart Defects Resources CDC

    https://www.cdc.gov/ncbddd/heartdefects/links.html
    Nov 12, 2019 · The Congenital Heart Information Network is a national organization providing education, support services, and financial assistance resources. It helps families of children with a congenital heart defect or acquired heart disease, as well as adults living with a congenital heart defect. Congenital Heart Public Health Consortium external icon

Congenital Heart Defect (Child): Connect with People Like ...

    https://supportnetwork.heart.org/connect-with-people-like-me/congenital-heart-defect/chd-child/
    Recovery happens here. Connect with families and caregivers of children experiencing congenital heart defects in our forum. Get emotional support. Join the community and …

Parents of children with congenital heart disease ...

    https://healthtalk.org/parents-children-congenital-heart-disease/sources-of-support
    Many parents said that they had received the best support from talking to other parents of children with congenital heart disease. They had found that their experiences or concerns were not unusual, they could share their concerns and ask questions, seeing that other children and parents had got through similar difficulties gave them hope, and it made them appreciate that their situation could ...

CHD Support Groups and Organizations for Heart Families ...

    https://blog.americanmedical-id.com/2018/02/chd-support-groups-organizations-heart-families/
    Parents whose children are diagnosed with CHD are presented with unique challenges such as becoming an expert and advocate, dealing with finances, and finding support. Study shows that parents of children with Congenital Heart Disease prefer more information than cardiologists provide. List of CHD Support Groups for CHD Parents and Families

Parental Stress and Resilience in Congenital Heart Disease ...

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6103210/
    Parental stress is a universal experience for parents who have children diagnosed with congenital heart disease and has been studied within the context of the child’s illness but not through a broader health disparity lens. This paper provides ...Cited by: 5

Recovery & Support for Congenital Heart Defects in ...

    https://nyulangone.org/conditions/congenital-heart-defects-in-children/support
    Wishful Hearts NYU Langone is an informal support group for parents of children with congenital heart disease. The group meets on the first Wednesday of every month from 10:30AM to 12:00PM in the Fink Children’s Ambulatory Care Center conference room, located at 160 East 32nd Street.Phone: (646) 929-7970

Special Needs For Children with a Congenital Heart Defect ...

    https://www.heart.org/en/health-topics/congenital-heart-defects/care-and-treatment-for-congenital-heart-defects/special-needs-for-children-with-a-congenital-heart-defect
    Regular medical care is important for all children, but especially for those with congenital heart disease. Your pediatric cardiologist will want your pediatrician or family doctor to check your child regularly. A child with a heart defect usually gets through common childhood illnesses as quickly and as easily as children with normal hearts.

Challenges Faced by Parents of Children with Congenital ...

    https://www.healthychildren.org/English/health-issues/conditions/heart/Pages/Challenges-Faced-by-Parents-of-Children-with-Congenital-Heart-Disease.aspx
    May 19, 2016 · Congenital Heart Disease (CHD) is the most common type of birth defect affecting 8 out of every 1,000 newborns. Each year, about 35,000 babies in the Unites States are diagnosed with CHD. Nearly 25% of those are critical congenital heart defects —ones that require surgery or other interventions within the first year of life to survive.

Coping in Parents of Children with Congenital Heart ...

    https://link.springer.com/article/10.1007%2Fs10826-019-01406-8
    Apr 17, 2019 · Congenital Heart Disease (CHD) is one of the most common types of birth defects, affecting 8 per 1000 babies born globally (Bernier et al. 2010), and prevalence has increased over time (van der Linde et al. 2011).As there are many variations of CHD which sometimes occur in combination and with differing severities, prognosis and treatment may vary between individuals.Cited by: 1

Parents of children with congenital heart disease - How it ...

    https://healthtalk.org/parents-children-congenital-heart-disease/how-it-affects-parents
    When they learned the diagnosis, parents felt shocked and devastated to discover that their child had congenital heart disease (see 'Parent's reactions').During the following months, parents were on an emotional roller-coaster, with down days and good days and sometimes found it hard to cope.



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