Find all needed information about Duchenne Family Support. Below you can see links where you can find everything you want to know about Duchenne Family Support.
The Duchenne Family Support Group (DFSG) exists to provide support for families with children diagnosed as having Duchenne Muscular Dystrophy (DMD). The DFSG is a national charity run by families for families affected by DMD. It provides a positive national support network of parents, their families and professionals. The DFSG helps bring families together for mutual support, sharing of ...
https://littleherculesfoundation.org/family-assistance-program/
To Support Duchenne Families. Little Hercules Foundation and Team Joseph have a strong history of working together to fund promising research. Recently, we decided that while we believe in the promise of future treatments, we also see the need to help families right now. ... The purpose of the Duchenne Family Assistance Program is to remove ...
https://www.jessesjourney.com/family-support-resources/
Stay in contact with the family who has received the diagnosis and ask them if there is anything they need – even a supportive person to talk to can be a great comfort. If you would like to help raise money for research in to Duchenne muscular dystrophy on behalf of a family, we have many resources available.
https://www.duchenne.com/resources
The Duchenne community is inspiring and supportive. There are many helpful resources and organizations to support families living with Duchenne. Here are just a few to get you started. Sarepta does not endorse nor is responsible for the content of any of the listed websites or the services provided by these organizations. This is not a complete list of available websites.
https://www.mdcrcindia.org/ourservices/family-support/
MDCRC conducts parents meet on a quarterly basis for the families with affected children. The experts from the MD community are invited to talk on the status of research for Duchenne Muscular Dystrophy(DMD) followed by interactive sessions with the parents …
https://www.duchenneuk.org/
Duchenne Direct. Duchenne Direct is a monthly Direct Debit from you to Duchenne UK, that is spent DIRECTLY on research. 100% of your donations will be ring-fenced and will go directly into our exciting research projects.
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