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The Duchenne Family Support Group (DFSG) exists to provide support for families with children diagnosed as having Duchenne Muscular Dystrophy (DMD). The DFSG is a national charity run by families for families affected by DMD. It provides a positive national support network of parents, their families and professionals. The DFSG helps bring families together for mutual support, sharing of …
https://www.duchenne.com/contact
Contact us for more information about Sarepta Duchenne support, clinical trials, and company information. Informational line: 1-888-SAREPTA.
https://news.harvard.edu/gazette/story/2020/01/major-study-on-duchenne-muscular-dystrophy-gains-support/
Jan 09, 2020 · Duchenne muscular dystrophy is a genetic disease caused by the lack of a protein called dystrophin that normally helps support the structural integrity of muscle fibers, including those in the heart. Without dystrophin, cells are weaker and degenerate more quickly.
https://www.duchennexchange.org/blog/how-to-support-a-duchenne-parent/
Support is Essential Finding support as a Duchenne parent is hard, but essential to our sanity. Very few people walk this path, which makes this journey lonely at times. Few people understand what it’s like to have a child with a degenerative disease.
https://www.mdjunction.com/duchenne-muscular-dystrophy
The Duchenne Muscular Dystrophy Support Group is a community of patients, family members and friends dedicated to dealing with Duchenne muscular dystrophy, together.
https://www.webmd.com/children/duchenne-muscular-dystrophy
Getting Support. To learn more about Duchenne muscular dystrophy or find a support group in your area, visit: Cure Duchenne, the Muscular Dystrophy Association, or the Parent Project Muscular ...Author: Stephanie Watson
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