Edwards Syndrome Support Ireland

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Soft Ireland - Support for Trisomy 13 & 18 Patau's ...

    https://www.softireland.com/
    Set up by parents for parents of Trisomy children, SOFT, the Support Organisation for Trisomy, in Ireland, is a voluntary group dedicated to providing support for families of children born with Patau’s Syndrome (Trisomy 13), Edwards’ Syndrome (Trisomy 18) and related chromosomal disorders.

Edwards syndrome Contact

    https://contact.org.uk/advice-and-support/medical-information/conditions/e/edwards-syndrome/
    The Organisation is a Registered Charity in England and Wales No. 1002918. It provides information and support for families affected by Trisomy 13 (Patau's Syndrome), Trisomy 18 (Edwards' Syndrome) and related disorders, including prenatal information and bereavement support. Group details last updated November 2016.

About Us - Soft Ireland - Support for Trisomy 13 & 18 ...

    http://www.softireland.com/about-us/
    SOFT Ireland Registered Charity Number (RCN) 20027094 Charity Reference Number (CHY) 10554. The SUPPORT ORGANISATION FOR TRISOMY (S.O.F.T.) was founded in Ireland in 1991 as a voluntary group dedicated to providing support for families of children born with the chromosomal disorders – Patau’s Syndrome or Trisomy l3 and Edwards’ Syndrome or Trisomy 18.

Trisomy 18 Support at Trisomy 18 Foundation

    https://www.trisomy18.org/
    Working together, we ensure families have the support they need and progress is made in understanding and treating Trisomy 18 through research. T18F brings hope to families and their children coping with Trisomy 18 by accelerating investments in research, building community and shaping dialogue in the medical and research communities.

Edwards syndrome - Wikipedia

    https://en.wikipedia.org/wiki/Edwards_syndrome
    Edwards syndrome, also known as trisomy 18, is a genetic disorder caused by the presence of a third copy of all or part of chromosome 18. Many parts of the body are affected. Babies are often born small and have heart defects.Causes: Third copy of chromosome 18 (usually new …

Against all odds - Independent.ie - Breaking News Ireland

    https://www.independent.ie/lifestyle/health/against-all-odds-26517562.html
    Against all odds As a baby born with Edwards' syndrome, Elaine Fagan was only given days to live, but the 23-year-old has managed to confound all medical expectations, says Joy Orpen

Edwards' syndrome (trisomy 18) - NHS

    https://www.nhs.uk/conditions/edwards-syndrome/
    Edwards' syndrome, also known as trisomy 18, is a rare but serious genetic condition that causes a wide range of severe medical problems. Sadly, most babies with Edwards' syndrome will …

SOFT UK - Support Organisation for Trisomy 13 and Trisomy 18

    https://www.soft.org.uk/
    About Soft UK. SOFT UK was founded in 1990 by two mothers, Christine Rose and Jenny Robbins. They had discovered first-hand that there was a lack of support and information for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.

What is Edwards SyndromeCausesSymptomsTreatmentLife ...

    https://www.epainassist.com/genetic-disorders/edwards-syndrome
    Oct 04, 2017 · Edwards Syndrome, which is commonly known by the name of Trisomy 18, is a rare genetic disorder in which the affected child tends to have extra 18th chromosome. Edwards Syndrome is so severe that in majority of the conditions the child succumbs to this condition before birth. Know the causes, symptoms, treatment, life expectancy and prognosis of Edwards Syndrome.



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