Facebook Marfan Support

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Marfan syndrome Support Group - Home Facebook

    https://www.facebook.com/Marfan-syndrome-Support-Group-106714702755471/
    Marfan syndrome Support Group. 358 likes. Hi I am a18 Yrs old who has Marfan Syndrome, I was told I had this when I was 4 years old. So I have lived with it for some time now. I dont let it affect...Followers: 370

Marfan Syndrome Support Ireland - Home Facebook

    https://www.facebook.com/MarfanIreland
    Marfan Syndrome Support Ireland. 1.2K likes. Support group for patients, families and friends affected by Marfan Syndrome and Loeys-Dietz Syndrome in the North and South of Ireland.Followers: 1.3K

Facebook Fundraising The Marfan Foundation

    https://www.marfan.org/facebook-fundraiser
    Facebook fundraising is a win-win for everyone. It’s a meaningful way to celebrate your birthday and The Marfan Foundation benefits (Facebook doesn’t even take any fees!). Need help getting started? Feel free to email us at [email protected].

Patients & families The Marfan Foundation

    https://www.marfan.org/resources/patients
    We offer fact sheets about various aspects of Marfan syndrome and related disorders and have an extensive video series that highlights the most commonly asked questions. We offer phone and online support groups for families coping with Marfan syndrome …

The Marfan Foundation - Home Facebook

    https://business.facebook.com/TheMarfanFoundation/
    The Marfan Foundation, Port Washington, NY. 21,785 likes · 243 talking about this · 86 were here. Marfan syndrome is a life-threatening genetic disorder of the body's connective tissue. It affects...4.8/5(397)

Marfan Support Forum (@Marfan_Forum) Twitter

    https://twitter.com/Marfan_Forum
    Feb 19, 2016 · The latest Tweets from Marfan Support Forum (@Marfan_Forum). Marfan syndrome is an inherited disorder of the body's connective tissue that affects men and …Followers: 1.9K

Marfan Trust - m.facebook.com

    https://m.facebook.com/MarfanTrustCharity
    Marfan Trust, London. 3,041 likes · 2 talking about this. Founded in 1988, the Marfan Trust funds research into the cause and prevention of Marfan syndrome, a dominantly inherited cardiac disorder...5/5

MARFAN SYNDROME

    https://www.ctdaus.com/marfan-syndrome.html
    The protein that plays a role in Marfan syndrome is called fibrillin-1. Marfan syndrome is caused by a defect (or mutation) in the gene that tells the body how to make fibrillin-1. This mutation results in an increase in a protein called transforming growth factor beta.

Support for Marfan Syndrome NYU Langone Health

    https://nyulangone.org/conditions/marfan-syndrome-in-adults/support
    Marfan syndrome is a lifelong condition, and doctors at NYU Langone provide ongoing support to help people manage the symptoms and improve their quality of life. You may need specialized care to prevent or slow serious medical conditions that can be associated with Marfan syndrome.

David BOWIE had Ehlers-Danlos Syndrome and Dysautonomia ...

    https://web.facebook.com/groups/590995447733405/
    David BOWIE had Ehlers-Danlos Syndrome and Dysautonomia has 448 members. TO discuss Ehlers-Danlos Syndrome, POTS and Marfan Syndrome in relation to David...



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