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The National Fragile X Foundation supports families living with Fragile X through community, awareness and education, and research. We provide help for today and hope for tomorrow. Together we can do more. Learn more about how we can help.
https://fragilex.org/living-with-fragile-x/personal-support/
The National Fragile X Foundation assists, educates, and provides personal support to individuals and families living with Fragile X disorders and inheritance. Contacting us will help you realize that you are not alone, offering you great comfort at a critical time. It will help you relax into what is ahead of you.
https://fragilex.org/living-with-fragile-x/life-strategies/resources/
Many Fragile X Clinics are opening across the United States and around the world. Clinics can guide parents to medication options that may address the symptoms of FXS, while new medications are coming on the market that aim to treat the underlying condition.Parents must address a new set of issues as their child with Fragile X syndrome grows into adulthood.
https://www.cdc.gov/ncbddd/fxs/facts.html
Connect with a Community Support Network (CSN) external icon at the National Fragile X Foundation. CSNs are organized and run by parent volunteers and provide support to families. References. Hunter J, Rivero-Arias O, Angelov A, Kim E, Fotheringham I, Leal J. Epidemiology of fragile X syndrome: a systematic review and meta-analysis.
https://fragilex.org/greater-atlanta-fragile-x/
Thank you for considering a donation today to help support Fragile X families, provide education, and facilitate research toward treatments and a cure.Donors like you help us provide these services to everyone, free-of-charge.
Fragile X syndrome is the most common inherited cause of autism and intellectual disabilities We directly fund research grants and fellowships at top universities around the world. We partner with biomedical and pharmaceutical companies, large and small, to bridge the gap …
https://www.webmd.com/children/what-is-fragile-x-syndrome
Fragile X Syndrome is an inherited disorder caused by genetics that affects a child's learning, behavior, appearance, and health. Learn more about the symptoms, causes, diagnosis, and treatment of ...
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