Fragile X Syndrome Family Support

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The National Fragile X Foundation Fragile X Syndrome

    https://fragilex.org/
    The National Fragile X Foundation supports families living with Fragile X through community, awareness and education, and research. We provide help for today and hope for tomorrow. Together we can do more. Learn more about how we can help.

Family Support for Fragile X Syndrome

    https://www.fragilex.org.uk/family-support-workers
    Caroline is the Society's Families and Professionals Advisor managing enquiries relating to children with Fragile X. Caroline joined the Fragile X Society in 2018, but has worked in the voluntary sector now for over 25 years supporting families.

Fragile X Fragile X Society United Kingdom

    https://www.fragilex.org.uk/
    Fragile X Syndrome is the most common inherited cause of learning disability. ... We provide information and practical guidance to support and empower individuals and families living with Fragile X, and the professionals who support them. Growing up with Fragile X: one family's story

What is Fragile X Syndrome: A Guide for Parents ...

    https://www.healthychildren.org/English/health-issues/conditions/developmental-disabilities/Pages/Fragile-X-Syndrome-Information-for-Parents.aspx
    May 25, 2016 · Fragile X syndrome (FXS) is ... or a history of early menopause or fertility problems in women on the mother's side of the family. These are symptoms of fragile X-associated disorders, which suggest that FXS could run in the family. ... Consider joining a local group of FXS families to share information and support each other.

Fragile X Syndrome: Symptoms, Causes, Diagnosis, and Treatment

    https://www.webmd.com/children/what-is-fragile-x-syndrome
    Fragile X Syndrome is an inherited disorder caused by genetics that affects a child's learning, behavior, appearance, and health. Learn more about the symptoms, causes, diagnosis, and treatment of ...

What is Fragile X Syndrome (FXS)? CDC

    https://www.cdc.gov/ncbddd/fxs/facts.html
    Connect with a Community Support Network (CSN) external icon at the National Fragile X Foundation. CSNs are organized and run by parent volunteers and provide support to families. References. Hunter J, Rivero-Arias O, Angelov A, Kim E, Fotheringham I, Leal J. Epidemiology of fragile X syndrome: a systematic review and meta-analysis.

Fragile X Association of Australia

    https://www.fragilex.org.au/
    Fragile X Association of Australia is a registered charity, funded by donations and fundraising. Donations of $2.00 and over are tax deductible. Your donation will help us support families affected by Fragile X, and to increase awareness of Fragile X associated conditions. Make a donation

Family Support & Counselling - Fragile X Association of ...

    https://www.fragilex.org.au/about-us/family-support-counselling/
    Fragile X Association of Australia offers support to families and people Australia-wide who are affected by Fragile X. Liz Jewell is our Family Support counsellor. Liz is available to connect with people who have Fragile X or their carers through a variety of ways –

12 Important Resources for Families with Fragile X Syndrome

    https://www.friendshipcircle.org/blog/2012/08/14/12-important-resources-for-families-with-fragile-x-syndrome/
    Aug 14, 2012 · 12 Important Resources for Families with Fragile X Syndrome Being a parent to a child with a disability, any disability, is like day after day of guiding your family’s boat through a constant storm.



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