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https://www.thinkgenetic.com/diseases/tay-sachs-disease/organizations/42441
There are several support groups or organizations for Tay-Sachs disease that provide support, information, advice, referrals to physicians and medical centers, and up …
https://www.mdjunction.com/tay-sachs-disease
The Tay-Sachs Disease Support Group is a community of patients, family members and friends dedicated to dealing with Tay-Sachs Disease, together.
https://www.ntsad.org/index.php/find-support
Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases. ... A Family Gathering The NTSAD Annual Family Conference is the cornerstone of our exceptional Family Support Services. It provides over ...
https://www.cats-foundation.org/
The CATS Foundation was established in June 2011 by Daniel and Patricia Lewi. Their daughter Amelie was diagnosed with Tay-Sachs at fifteen months of age in March 2011 and at the time there was no UK based charity dedicated to providing support for families affected by Tay-Sachs or Sandhoff disease.
http://www.dailystrength.org/c/Tay-Sachs-Disease/support-group
Support Groups Community Groups A The pressures of sex from peers, the media and culture can be overwhelming, but you are in total control of your body and celibacy is a choice that...
https://www.care.com/c/for/tay-sachs-disease
The Kinsights Tay-Sachs disease support group is a safe and secure online community to get answers from parents, mentors, and experts on Tay-Sachs disease and connect with parents who can relate. Joining our group is totally free! How we can help There is much more to managing your child’s Tay-Sachs disease than going to the doctor and having ...
https://www.facebook.com/groups/NTSADFamilySupport/
This group is for immediate family members only of someone affected (living or deceased) by Tay-Sachs, Sandhoff, GM1 and Canavan in all forms of severity. It …
https://www.who.int/genomics/public/patientsupport/en/
Patient support groups. Treatment involves more than routine medical diagnosis, hospitalised care or even the prescription of drugs. When confronted by illness, patients seek professional help and advice from their doctors, and also rely on support from family members, peers and fellow patients. ... Tay-sachs disease. National Tay Sachs and ...
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