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HD Support & Care Network and Huntington’s Disease Society of America Partner for Stronger HD Support Groups in California and Arizona 08/17/2016 Deutetrabenazine for Huntington’s disease: a positive trial but the FDA says no?
https://hdsa.org/find-help/community-social-support/hdsa-support-groups/
HDSA Support Groups are offered by HDSA Chapters, Affiliates, Regions and Centers of Excellence. Support groups can be led by a professional or by a peer (other HD family member or friend). Every support group leader is provided training by HDSA and assigned a mentor who can serve as a resource and support to the support group leader.
https://www.healthline.com/health/huntingtons-disease
Huntington’s disease is a hereditary condition in which your brain’s nerve cells gradually break down. This affects your physical movements, emotions, and cognitive abilities. There is no cure, but there are ways to cope with this disease and its symptoms. Huntington’s disease is …
https://www.nhs.uk/conditions/huntingtons-disease/treatment/
The Huntington's Disease Association has more information about getting help for Huntington's disease, including advice about: behavioural problems. communication skills. sexual problems. diet, eating and swallowing. seating, equipment and adaptations. your options when full-time care is ...
https://www.caregiver.org/huntington%E2%80%99s-disease
Cognitive: Huntington’s disease causes changes in the brain that slow processing of information and hamper organizational ability. Thus, your loved one may find it increasingly challenging to organize typical household matters, cope with new situations, or switch from task to task (multi-tasking).
https://www.huntingtonsdiseasefoundation.org/
Your support as an ambassador helps Huntington's Disease Foundation maximize their reach and increase awareness. By being an ambassador, you may open new doors for our organization to attract program participants, raise funds, raise awareness and recruit volunteers.
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