Find all needed information about Leukodystrophy Support. Below you can see links where you can find everything you want to know about Leukodystrophy Support.
https://www.inspire.com/groups/united-leukodystrophy-foundation/
The United Leukodystrophy Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the United Leukodystrophy Foundation, an Inspire trusted partner. More about this community
The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a non-profit, voluntary health organization dedicated to funding cutting-edge research and to providing patients and their families with disease information and medical referrals.
https://www.leuko.org.au/
Leukodystrophy Australia has been fortunate enough to partner Humaniti, Australia’s first personal finance app where you can earn money. Humaniti helps members (“Humanitirians”) get more organised and plan a better future, earn extra dollars, and collectively make a difference to those who need it.
https://www.chop.edu/conditions-diseases/leukodystrophy
At CHOP’s Leukodystrophy Center, your child’s team of providers includes experts in neurology, metabolism, complex care pediatrics, genetics, rehabilitative medicine, physical therapy, occupational therapy, speech therapy, and nutrition, with additional nursing and social work support.
https://www.webmd.com/brain/leukodystrophy-types
Leukodystrophy refers to a group of diseases that affect the central nervous system. Learn the causes, symptoms, and treatment options.
https://www.leukodystrophyforum.com/foundations-and-organizations
Australasian Leukodystrophy Foundation - The Leukodystrophy Resource & Research Organisation Incorporated (LRRO) and the Australasian Leukodystrophy Foundation (ALF) were started by Bob Wyborn to meet an urgent Australasian need to supply and support research for leukodystrophies and related leukoencephalopathies.
https://www.ninds.nih.gov/Disorders/All-Disorders/Leukodystrophy-Information-Page
Leukodystrophy refers to progressive degeneration of the white matter of the brain due to imperfect growth or development of the myelin sheath, the fatty covering that acts as an insulator around nerve fiber. Myelin, which lends its color to the white matter of the brain, is a complex substance made up of at least ten different chemicals.
https://cureleukodystrophy.org/
For the past 35 years, the United Leukodystrophy Foundation has provided hope to families who face the devastating diagnosis of leukodystrophy. Over our history, the ULF has been a resource for information, medical referrals, research grants, programming and a support network to remind affected individuals that they are not alone in this fight.
https://www.dailystrength.org/group/leukodystrophies
Leukodystrophies Support Group. Leukodystrophy refers to progressive degeneration of the white matter of the brain due to imperfect growth or development of the myelin sheath, the fatty covering that acts as an insulator around nerve fiber. Myelin, which lends its color to the white matter of the brain, is a complex substance made up of at ...
https://ghr.nlm.nih.gov/condition/metachromatic-leukodystrophy
Oct 15, 2019 · Metachromatic leukodystrophy is an inherited disorder characterized by the accumulation of fats called sulfatides in cells. This accumulation especially affects cells in the nervous system that produce myelin, the substance that insulates and protects nerves.Nerve cells covered by myelin make up a tissue called white matter.
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