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The George Pantziarka TP53 Trust is the UK’s only charity dedicated to supporting families with Li Fraumeni Syndrome and related conditions. It offers practical support and advice, publishes information for patients and doctors alike and is dedicated to making a difference with research.
http://www.livinglfs.org/support/
European Li-Fraumeni Families Foundation Support Groups – Country-specific private support groups available for 40 European countries; MDJunction Li-Fraumeni Syndrome Support Group – This support group is a community of patients, family members and friends dedicated to dealing with Li-Fraumeni Syndrome, together.
https://www.lfsassociation.org/
LFS Association provides a wide range of information, advocacy, and support services for individuals and families with Li-Fraumeni Syndrome.
https://rarediseases.org/rare-diseases/li-fraumeni-syndrome/
Li-Fraumeni syndrome (LFS) is an inherited familial predisposition to a wide range of certain, often rare, cancers. This is due to a change (mutation) in a tumor suppressor gene known as TP53. The resulting p53 protein produced by the gene is damaged (or otherwise rendered malfunctioning), and is ...
https://contact.org.uk/advice-and-support/medical-information/conditions/l/li-fraumeni-syndrome/
www.tp53.co.uk. The George Pantziarka TP53 Trust was established in 2012 to provide support to families affected by Li Fraumeni syndrome and encourage research. It runs a website and forum to bring together all those affected by or interested in the condition …
https://www.lfsassociation.org/what-is-lfs/
Li-Fraumeni syndrome (LFS) is an inherited familial predisposition to a wide range of certain, often rare, cancers.This is due to a change (mutation) in a tumor suppressor gene known as TP53. The resulting p53 protein produced by the gene is damaged (or otherwise rendered malfunctioning), and is unable to help prevent malignant tumors from developing.
https://ghr.nlm.nih.gov/condition/li-fraumeni-syndrome
Oct 29, 2019 · Li-Fraumeni syndrome is a rare disorder that greatly increases the risk of developing several types of cancer, particularly in children and young adults.. The cancers most often associated with Li-Fraumeni syndrome include breast cancer, a form of bone cancer called osteosarcoma, and cancers of soft tissues (such as muscle) called soft tissue sarcomas.
https://lifraumeni.eu/eu-patients-support-fora/
UK Pantziarka Forum; EU Facebooks about LFS . Living with LFS; Netherlands Belangengroep Li Fraumeni ; Li Fraumeni and P53 support group; EU ELFF; Germany Li Fraumeni assocation; America Patient support. America LFSA
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