Li Fraumeni Syndrome Support

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Li-Fraumeni Syndrome Association - Support

    https://www.lfsassociation.org/
    LFS Association provides a wide range of information, advocacy, and support services for individuals and families with Li-Fraumeni Syndrome.

Support - Living LFS – Li-Fraumeni Syndrome

    https://www.livinglfs.org/support/
    Li-Fraumeni Syndrome Support Group is a Facebook Closed Group with people from all over the world who understand what it is like to be Living LFS. We limit this group to those with LFS, their primary caregiver, or for those undergoing testing for the P53 mutation.

Support Li-Fraumeni Syndrome Association

    https://www.lfsassociation.org/contact-us/support/
    1st Annual Li-Fraumeni Syndrome Conference 2nd Annual “Living with LFS” Webinar Conference The 2016 International LFS Conference & The 3rd Annual LiFE …

Li-Fraumeni syndrome - Genetics Home Reference - NIH

    https://ghr.nlm.nih.gov/condition/li-fraumeni-syndrome
    Oct 29, 2019 · Li-Fraumeni syndrome is a rare disorder that greatly increases the risk of developing several types of cancer, particularly in children and young adults.. The cancers most often associated with Li-Fraumeni syndrome include breast cancer, a form of bone cancer called osteosarcoma, and cancers of soft tissues (such as muscle) called soft tissue sarcomas.

Li-Fraumeni Syndrome - NORD (National Organization for ...

    https://rarediseases.org/rare-diseases/li-fraumeni-syndrome/
    Li-Fraumeni syndrome (LFS) is an inherited familial predisposition to a wide range of certain, often rare, cancers. This is due to a change (mutation) in a tumor suppressor gene known as TP53. The resulting p53 protein produced by the gene is damaged (or otherwise rendered malfunctioning), and is ...

EU Li-Fraumeni Support site – For the families involved

    https://lifraumeni.eu/
    Li-Fraumeni syndrome is a rare, inherited disorder that is caused by mutations (changes) in the TP53 gene. Having Li-Fraumeni syndrome increases the risk of developing many types of cancer. Cancers often develop at an early age, and more than one type of cancer may occur in the same person.

Li-Fraumeni syndrome Genetic and Rare Diseases ...

    https://rarediseases.info.nih.gov/diseases/6902/li-fraumeni-syndrome
    May 04, 2015 · Li-Fraumeni syndrome (LFS) is an inherited condition that is characterized by an increased risk for certain types of cancer.Affected people often develop cancer at an earlier age than expected and may be diagnosed with more than one cancer during their lifetime.

Living LFS Li-Fraumeni Syndrome TP53 Gene Mutation

    http://www.livinglfs.org/
    Li-Fraumeni Syndrome Support Group. Click here to join a private Facebook support group specifically for those living with LFS. A place to share, ask questions and learn from the experiences of others who are just like you. Li-Fraumeni Syndrome Family & Friends

Living with Li-Fraumeni Syndrome is Using Knowledge as ...

    https://blog.dana-farber.org/insight/2019/08/living-with-li-fraumeni-syndrome-is-using-knowledge-as-power/
    Aug 30, 2019 · Some individuals have been found to have a mutated TP53 gene, increasing their cancer risk, but their family histories don’t show the typical clustering of cancer cases seen in Li-Fraumeni syndrome. To serve and support people in either of these categories, Dana-Farber developed the Li-Fraumeni Syndrome and TP53 Center.



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