Marfan Support Columbus

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Connect with Community The Marfan Foundation

    https://www.marfan.org/get-involved/community
    The mentor program ensures that anyone who wants to connect with someone and ask questions has a way to do this, regardless of their location. It is a great opportunity for people learn and get support from others in the community.

Find a Group The Marfan Foundation

    https://www.marfan.org/secure/community-support
    We can connect you with local community groups, which are located all over the country. Many groups focus on social and support events, while other groups also hold fundraising and awareness events. You can get involved in all or some of the events held by your local group. In some areas, we have individual support volunteers rather than a group.

Marfan Syndrome Support Groups Online DailyStrength

    https://www.dailystrength.org/group/marfan-syndrome
    Dec 24, 2016 · Marfan Syndrome Support Group. Marfan syndrome is a connective tissue disorder characterized by unusually long limbs. The most serious conditions associated with Marfan syndrome primarily involve the cardiovascular system. Marfan syndrome may cause leakage of the mitral or aortic valves that control the flow of blood through the heart.

Marfan Support Forum (@Marfan_Forum) Twitter

    https://twitter.com/Marfan_Forum
    Feb 19, 2016 · The latest Tweets from Marfan Support Forum (@Marfan_Forum). Marfan syndrome is an inherited disorder of the body's connective tissue that …Followers: 1.9K

Marfan syndrome Support Group - Home Facebook

    https://www.facebook.com/Marfan-syndrome-Support-Group-106714702755471/
    Marfan syndrome Support Group. 358 likes. Hi I am a18 Yrs old who has Marfan Syndrome, I was told I had this when I was 4 years old. So I have lived …Followers: 370

Marfan Syndrome Support Ireland - Home Facebook

    https://www.facebook.com/MarfanIreland
    Marfan Syndrome Support Ireland. 1.2K likes. Support group for patients, families and friends affected by Marfan Syndrome and Loeys-Dietz Syndrome in the North and South of Ireland.Followers: 1.3K

Marfan Syndrome - nationwidechildrens.org

    https://www.nationwidechildrens.org/conditions/marfan-syndrome
    Complete family history to identify additional relatives who have the signs and symptoms of Marfan Syndrome. Having a first-degree relative with Marfan Syndrome, carrying genetic markers consistent with Marfan syndrome or a mutation in a gene that causes Marfan Syndrome are major criteria in the Family History system.

Marfan Syndrome Support Group Ireland

    http://marfan.ie/index.php?id=1
    Marfan Syndrome. Welcome to the Marfan Syndrome Support Group website. We hope you will find our site helpful. It is our hope that we can show our support to you and your family through friendship and people to listen.

Marfan Syndrome National Heart, Lung, and Blood ...

    https://www.nhlbi.nih.gov/health-topics/marfan-syndrome
    Marfan syndrome is a genetic condition that affects a protein in the body that helps build healthy connective tissues. Connective tissues support the bones, muscles, and organs in your body and allow your skin, blood vessels, and ligaments to stretch.

Batten Disease Support & Research Association

    https://bdsra.org/
    Oct 29, 2019 · BDSRA exists for those affected by Batten Disease. We are dedicated to funding research for treatments and cures, providing family support services, advancing education, raising awareness, and advocating for legislative action.



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