Marfan Support Forum

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Our Online Community The Marfan Foundation

    https://www.marfan.org/get-involved/community/online-community
    Our online community, much like other social networking outlets like Facebook, provides a fun and engaging way for people living with Marfan syndrome and related disorders to find each other, share experiences, and create community. Our online community features allow you to: create a profile; stay in touch with your friends

Marfan Support Forum (@Marfan_Forum) Twitter

    https://twitter.com/Marfan_Forum
    Feb 19, 2016 · Marfan Support Forum @ Marfan_Forum Marfan syndrome is an inherited disorder of the body's connective tissue that affects men and women of any …Followers: 1.9K

Local Support & Groups The Marfan Foundation

    https://www.marfan.org/get-involved/connect-community/local-community
    Other Ways to Get SupportPhone Support Groups Find a Mentor Become a Mentor Join our Online Community Ask Our Help Local Support & Groups The Marfan Foundation Skip to main content

Phone Support Groups The Marfan Foundation

    https://www.marfan.org/resources-answers/patients-families/phone-support-groups
    phone_support1.jpg Join a phone support group today! Phone support groups are a great way to connect with others in the Marfan syndrome and related condittions community. Groups meet once a month for six months. Phone support group calls are toll-free.

Marfan Syndrome Forum Page - Home Facebook

    https://www.facebook.com/MarfanForumPage
    Marfan Syndrome Forum Page. 674 likes · 2 talking about this. Support page for MARFAN Syndrome, LDS - Loeys-Dietz, EDS - Ehlers-Danlos syndrome &...Followers: 699

The Marfan Foundation

    https://www.marfan.org/event/parent-toolkit/your-resources-supports
    The Marfan Foundation also provides counseling services through our Help & Resource Center, Telephone Support Groups, and Online Support Groups. Often it is beneficial for a young person with Marfan to talk with another young person who has the same diagnosis.

Marfan Syndrome Support Groups Online DailyStrength

    https://www.dailystrength.org/group/marfan-syndrome
    Dec 24, 2016 · Marfan Syndrome Support Group. Marfan syndrome is a connective tissue disorder characterized by unusually long limbs. The most serious conditions associated with Marfan syndrome primarily involve the cardiovascular system. Marfan syndrome may cause leakage of the mitral or aortic valves that control the flow of blood through the heart.

The Marfan Foundation Know the signs. Fight for victory.

    https://www.marfan.org/
    Marfan syndrome is a life-threatening genetic condition, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related conditions. Knowing the signs of these conditions can save lives. Learn more.

Marfan syndrome Support Group - Home Facebook

    https://www.facebook.com/Marfan-syndrome-Support-Group-106714702755471/
    Marfan syndrome Support Group. 358 likes. Hi I am a18 Yrs old who has Marfan Syndrome, I was told I had this when I was 4 years old. So I have lived with it for some time now. I dont let it affect...Followers: 370

"Marfan Syndrome": Heart Disease Community - Support Group

    https://forums.webmd.com/3/heart-disease-exchange/forum/1451/0
    It's a safe forum where you can create or participate in support groups and discussions about health topics that interest you. Second Opinion Read expert perspectives on popular health topics.



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