Find all needed information about Marfan Syndrome Support. Below you can see links where you can find everything you want to know about Marfan Syndrome Support.
Marfan syndrome is a life-threatening genetic condition, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related conditions. Knowing the signs of these conditions can save lives. Learn more.
https://www.marfan.org/get-involved/connect-community/local-community
What is Marfan Syndrome? What are Related Conditions? What are the Signs? How is the Body Affected? WHAT IS NEONATAL MARFAN SYNDROME? Current Research; What to Expect. ... Local Support & Groups. Other Ways to Get Support. Phone Support Groups Find a Mentor Become a Mentor Join our Online Community Ask Our Help Center . Can't Find a Group?
https://give.marfan.org/give/85796/#!/donation/checkout
Your donation assists us in creating a brighter future for everyone living with Marfan syndrome, VEDS, and related disorders. It allows us to pursue the most innovative research to improve the lives of our community; inform the public and educate the patient community to increase early diagnosis and ensure life-saving treatment; and provide essential support to families, caregivers, and ...
https://www.dailystrength.org/group/marfan-syndrome
Dec 24, 2016 · Marfan Syndrome Support Group. Marfan syndrome is a connective tissue disorder characterized by unusually long limbs. The most serious conditions associated with Marfan syndrome primarily involve the cardiovascular system. Marfan syndrome may cause leakage of the mitral or aortic valves that control the flow of blood through the heart.
https://nyulangone.org/conditions/marfan-syndrome-in-adults/support
Marfan syndrome is a lifelong condition, and doctors at NYU Langone provide ongoing support to help people manage the symptoms and improve their quality of life. You may need specialized care to prevent or slow serious medical conditions that can be associated with Marfan syndrome.
Marfan Syndrome. Welcome to the Marfan Syndrome Support Group website. We hope you will find our site helpful. It is our hope that we can show our support to …
http://www.marfantrust.org/
Oct 12, 2019 · The Marfan Trust has three objectives: To fund medical research projects that aim to aid the diagnosis and treatment of Marfan syndrome patients. To provide educational literature on Marfan syndrome and all its aspects to the medical profession and the general public, thus raising awareness of the condition. To provide peer-to-peer support and medical guidance to those affected and their families.
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