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Marfan syndrome is a life-threatening genetic condition, and an early, accurate diagnosis is essential, not only for people with Marfan syndrome, but also for those with related conditions. Knowing the signs of these conditions can save lives. Learn more.
http://www.marfantrust.org/
Oct 12, 2019 · The Marfan Trust has three objectives: To fund medical research projects that aim to aid the diagnosis and treatment of Marfan syndrome patients. To provide educational literature on Marfan syndrome and all its aspects to the medical profession and the general public, thus raising awareness of the condition. To provide peer-to-peer support and medical guidance to those affected and their families.
https://www.marfan.org/resources/patients
We offer fact sheets about various aspects of Marfan syndrome and related disorders and have an extensive video series that highlights the most commonly asked questions. We offer phone and online support groups for families coping with Marfan syndrome …
https://www.nhs.uk/conditions/Marfan-syndrome/
Marfan syndrome is a disorder of the body's connective tissues, a group of tissues that maintain the structure of the body and support internal organs and other tissues. ... affecting about 1 in 5,000 people in the UK, it's one of the most common connective tissue disorders.
https://twitter.com/Marfan_Forum
Feb 19, 2016 · The latest Tweets from Marfan Support Forum (@Marfan_Forum). Marfan syndrome is an inherited disorder of the body's connective tissue that affects men and women of any race or ethnic group. Join Our forum for more info!. United KingdomFollowers: 1.9K
https://www.nhs.uk/conditions/marfan-syndrome/symptoms/
Marfan syndrome can affect many parts of the body, including the skeleton, eyes, and heart and blood vessels (cardiovascular system). The severity of the symptoms varies widely. Some people experience a few mild symptoms, whereas others experience more severe symptoms. The symptoms of Marfan syndrome tend to get more severe as a person gets older.
https://contact.org.uk/advice-and-support/medical-information/conditions/m/marfan-syndrome/
A person with Marfan syndrome will usually be characteristically tall and slim, with lax or hypermobile joints (see entry Hypermobility syndrome). Most are shortsighted. Credits. Medical text written November 2010 by Dr Anne Child, Reader in Cardiovascular Genetics, St George's University of London, London UK.
On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan and related conditions are supporting The Marfan Foundation because of our impact on their lives. Liam, Peter, and Katie share how the Foundation is helping them achieve #VictoryToday.
https://www.dailystrength.org/group/marfan-syndrome
Dec 24, 2016 · Marfan Syndrome Support Group. Marfan syndrome is a connective tissue disorder characterized by unusually long limbs. The most serious conditions associated with Marfan syndrome primarily involve the cardiovascular system. Marfan syndrome may cause leakage of the mitral or aortic valves that control the flow of blood through the heart.
https://en.wikipedia.org/wiki/Marfan_syndrome
Marfan syndrome (MFS) is a genetic disorder of the connective tissue. The degree to which people are affected varies. People with Marfan tend to be tall and thin, with long arms, legs, fingers and toes. They also typically have flexible joints and scoliosis. The most serious complications involve the heart and aorta, with an increased risk of mitral valve prolapse and aortic aneurysm.Causes: Genetic (autosomal dominant)
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