Find all needed information about Marfans Support. Below you can see links where you can find everything you want to know about Marfans Support.
https://www.marfan.org/secure/community-support
We can connect you with local community groups, which are located all over the country. Many groups focus on social and support events, while other groups also hold fundraising and awareness events. You can get involved in all or some of the events held by your local group. In some areas, we have individual support volunteers rather than a group.
https://www.marfan.org/resources/patients
We offer fact sheets about various aspects of Marfan syndrome and related disorders and have an extensive video series that highlights the most commonly asked questions. We offer phone and online support groups for families coping with Marfan syndrome and related disorders. We can help you find local support.
https://www.marfan.org/get-involved/connect-community/local-community
Other Ways to Get SupportPhone Support Groups Find a Mentor Become a Mentor Join our Online Community As Local Support & Groups The Marfan Foundation Skip to main content
https://www.dailystrength.org/group/marfan-syndrome
Dec 24, 2016 · Marfan Syndrome Support Group. Marfan syndrome is a connective tissue disorder characterized by unusually long limbs. The most serious conditions associated with Marfan syndrome primarily involve the cardiovascular system. Marfan syndrome may cause leakage of the mitral or aortic valves that control the flow of blood through the heart.
https://www.thinkgenetic.com/diseases/marfan-syndrome/organizations/6918
There are many good support groups for people with Marfan syndrome. These include: The Marfan Foundation; The Marfan Trust charity; International Federation of Marfan Syndrome Organizations; Marfan Syndrome Support Group Ireland; Marfan Association UK
Oct 12, 2019 · The Marfan Trust has three objectives: To fund medical research projects that aim to aid the diagnosis and treatment of Marfan syndrome patients. To provide educational literature on Marfan syndrome and all its aspects to the medical profession and the general public, thus raising awareness of the condition. To provide peer-to-peer support and medical guidance to those affected and their …
https://www.marfan.org/about-us/about
The Marfan Foundation's mission is to save lives and improve the quality of life of individuals with Marfan syndrome and other genetic aortic conditions.Our ValuesIn our mission to save and improve lives, we hold a number of core beliefs and values that drive everything we do:We put families at the heart of what we do.Marfan syndrome and related conditions affect not only individuals but also ...
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