Find all needed information about Marfans Syndrome Support. Below you can see links where you can find everything you want to know about Marfans Syndrome Support.
https://www.marfan.org/resources-answers/patients-families/phone-support-groups
phone_support1.jpg Join a phone support group today! Phone support groups are a great way to connect with others in the Marfan syndrome and related condittions community. Groups meet once a month for six months. Phone support group calls are toll-free.
https://www.marfan.org/resources/patients
We offer fact sheets about various aspects of Marfan syndrome and related disorders and have an extensive video series that highlights the most commonly asked questions. We offer phone and online support groups for families coping with Marfan syndrome and related disorders. We can help you find local support.
https://www.marfan.org/get-involved/connect-community/local-community
Other Ways to Get SupportPhone Support Groups Find a Mentor Become a Mentor Join our Online Community Ask Our Help Local Support & Groups The Marfan Foundation Skip to main content
https://www.thinkgenetic.com/diseases/marfan-syndrome/organizations/6918
There are many good support groups for people with Marfan syndrome. These include: The Marfan Foundation; The Marfan Trust charity; International Federation of Marfan Syndrome Organizations; Marfan Syndrome Support Group Ireland; Marfan Association UK
https://www.marfan.org/about-us/how-we-help
Through research, patient support, and education, we create a brighter future for everyone affected by Marfan syndrome and related conditions. We tirelessly advance the research for treatments that save lives and dramatically enhance quality of life for affected people.
https://www.nhs.uk/conditions/Marfan-syndrome/
Marfan syndrome is a disorder of the body's connective tissues, a group of tissues that maintain the structure of the body and support internal organs and other tissues. Children usually inherit the disorder from one of their parents. Some people are only mildly affected by Marfan syndrome,...
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