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https://moebiussyndrome.org/
The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.
https://ghr.nlm.nih.gov/condition/moebius-syndrome
Oct 15, 2019 · Moebius syndrome is a rare neurological condition that primarily affects the muscles that control facial expression and eye movement. The signs and symptoms of this condition are present from birth. Weakness or paralysis of the facial muscles is one of the most common features of Moebius syndrome.Affected individuals lack facial expressions; they cannot smile, frown, or raise their eyebrows.
https://moebiussyndrome.org/support-resources/
Support & Resources Welcome to the Moebius Syndrome Foundation! We offer resources, ways to connect with other families and individuals living with Moebius, events, volunteer opportunities, education and updates on scientific advances.
https://www.disabled-world.com/health/neurology/moebius-syndrome.php
Counseling and Psychosocial Support. Children with Moebius syndrome may feel discouraged, 'left out,' or different. The fact that they are unable to communicate fully through facial expressions may find others thinking they are unfriendly, antisocial, or simply unobservant.Author: Disabled World
https://en.wikipedia.org/wiki/M%C3%B6bius_syndrome
Möbius syndrome is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. Most people with Möbius syndrome are born with complete facial paralysis and cannot close their eyes or form facial expressions. Limb and chest wall abnormalities sometimes occur with the syndrome.Specialty: Medical genetics
https://manyfacesofmoebiussyndrome.org/moebius-syndrome-awareness-day-letters-of-support/
Advocacy days, like Rare Disease and the Moebius Syndrome Awareness Day, are key components to spreading messages of awareness, advocacy, and hope both within the community and to the public. The National Organization for Rare Disorders (NORD) is the US sponsor of Rare Disease Day.
https://rarediseases.info.nih.gov/diseases/8549/moebius-syndrome/cases/55936
Apr 30, 2016 · For Moebius syndrome there is a very active support and advocacy group in the United States - but like most foundations for rare conditions, it welcomes international members. It has an active young adult and adult platform .
https://www.verywellhealth.com/moebius-syndrome-overview-4174971
Moebius syndrome is usually diagnosed at birth and prompt diagnosis and treatment are important to ensure a person with the condition gets the support they need. While some children with Moebius syndrome may have motor or speech delays, these are usually a result of physical symptoms associated with the mouth or muscles of the limbs.
https://healthjade.net/moebius-syndrome/
What is Moebius syndrome. Moebius syndrome is a rare neurological birth defect (congenital) that primarily affects the muscles that control facial expression and eye movement 1).The first symptom, present at birth, is an inability to suck.
https://www.diseaseinfosearch.org/Moebius+Syndrome/4844/support
Our mission is to provide information and support to individuals with Moebius Syndrome and their families, promote greater awareness and understanding of Moebius Syndrome, and advocate for scientific research.
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