Moebius Syndrome Support Forum

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Möbius syndrome - Wikipedia

    https://en.wikipedia.org/wiki/M%C3%B6bius_syndrome
    Möbius syndrome is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. Most people with Möbius syndrome are born with complete facial paralysis and cannot close their eyes or form facial expressions. Limb and chest wall abnormalities sometimes occur with the syndrome.Specialty: Medical genetics

Moebius Syndrome Foundation - The Home for the Moebius ...

    https://moebiussyndrome.org/
    The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

Support & Resources - Moebius Syndrome FoundationMoebius ...

    https://moebiussyndrome.org/support-resources/
    Support & Resources Welcome to the Moebius Syndrome Foundation! We offer resources, ways to connect with other families and individuals living with Moebius, events, volunteer opportunities, education and updates on scientific advances.

Moebius syndrome - Genetics Home Reference - NIH

    https://ghr.nlm.nih.gov/condition/moebius-syndrome
    Oct 15, 2019 · Moebius syndrome is a rare neurological condition that primarily affects the muscles that control facial expression and eye movement. The signs and symptoms of this condition are present from birth. Weakness or paralysis of the facial muscles is one of the most common features of Moebius syndrome.Affected individuals lack facial expressions; they cannot smile, frown, or raise their eyebrows.

Moebius syndrome Genetic and Rare Diseases Information ...

    https://rarediseases.info.nih.gov/diseases/8549/mobius-syndrome
    86 rows · Mar 03, 2016 · ClinicalTrials.gov lists trials that are related to Moebius syndrome. Click on …

Moebius Syndrome: Symptoms, Information, Treatment and ...

    https://www.disabled-world.com/health/neurology/moebius-syndrome.php
    Counseling and Psychosocial Support. Children with Moebius syndrome may feel discouraged, 'left out,' or different. The fact that they are unable to communicate fully through facial expressions may find others thinking they are unfriendly, antisocial, or simply unobservant. Counselors, child psychologists, social workers and other mental health ...Author: Disabled World

Moebius Syndrome Information Page National Institute of ...

    https://www.ninds.nih.gov/Disorders/All-Disorders/Moebius-Syndrome-Information-Page
    Mar 27, 2019 · Moebius syndrome is a rare birth defect caused by the absence or underdevelopment of the 6th and 7th cranial nerves, which control eye movements and facial expression. Many of the other cranial nerves may also be affected, including the 3rd, 5th, 8th, 9th, 11th and 12th.

Moebius syndrome Genetic and Rare Diseases Information ...

    https://rarediseases.info.nih.gov/diseases/8549/moebius-syndrome/cases/55936
    Apr 30, 2016 · This question is a bit difficult to answer due to the fact that not all individuals with Moebius syndrome are affected in the same way. Moebius syndrome primarily affects cranial nerves 6 and 7, causing those with the condition to be unable to move their faces (smile, frown, etc.) or move their eyes from side to side.

Moebius syndrome Contact

    https://www.contact.org.uk/advice-and-support/medical-information/conditions/m/moebius-syndrome/
    There is no support group for Moebius syndrome in the UK. Cross referrals to other entries in The Contact a Family Directory are intended to provide relevant support for those particular features of the disorder. Organisations identified in those entries do not provide support specifically for …



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