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Through my journey with non-epileptic seizures, the thing my family and I were missing was someone who was going through the same thing. I created NESDES to do exactly that. I hope that we are able to bring people with non-epileptic seizures together and create a network of support.
http://nonepilepticattacks.info/6_support.html
May 05, 2011 · Are there any support groups? The NEAD Trust is a registered charity involved in providing support to patients with non-epileptic attacks and their families. They hold regular support meetings and have an online forum where patients and their families can receive more information about NEAD and talk to others about the condition.
http://www.nonepilepticattackdisorder.org.uk/non-epileptic-attack-disorder/
Non Epileptic Attack Disorder. Non epileptic attacks look like epileptic seizures but are not caused by electrical activity in the brain. The condition has several other names such as dissociative seizures, psychogenic non epileptic seizures (PNES), functional seizures …
https://www.epilepsy.com/learn/diagnosis/imitators-epilepsy/psychogenic-nonepileptic-seizures-pnes-cause-diagnosis-and
Self-control of Epileptic Seizures by Nonpharmacological Strategies; Severity of Self-reported Insomnia in Adults with Epilepsy is Related to Comorbid Medical Disorders and Depressive Symptoms; Should we stop saying “epileptic”? A Comparison of the Effect of the Terms “Epileptic” and “Person with Epilepsy”
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