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Through my journey with non-epileptic seizures, the thing my family and I were missing was someone who was going through the same thing. I created NESDES to do exactly that. I hope that we are able to bring people with non-epileptic seizures together and create a network of support.
https://www.epilepsy.com/article/2013/1/nonepileptic-seizures-%E2%80%93-what-are-they-and-what-can-i-do
Jan 16, 2013 · Recent articles have talked about psychogenic seizures, or seizures that are not epilepsy. This can be a confusing topic and it may be difficult to understand what these events are, and what they are not, and how to get the right help. This week's column addresses some frequently asked questions. Please remember that just like epilepsy, there is no one treatment that is best for everyone ...
http://nonepilepticattacks.info/6_support.html
May 05, 2011 · They hold regular support meetings and have an online forum where patients and their families can receive more information about NEAD and talk to others about the condition. The NEAD Trust is a registered charity involved in providing support to …
https://nonepilepticseizures.com/epilepsy-psychogenic-NES-support-community-meeting.php
Monthly Support groups for psychogenic non epileptic seizures (This group is only open to patients who have completed treatment at the Northeast Regional Epilepsy Group) The way we measure if individual and group therapy have been effective is:
http://www.nonepilepticattackdisorder.org.uk/non-epileptic-attack-disorder/
Non Epileptic Attack Disorder. Non epileptic attacks look like epileptic seizures but are not caused by electrical activity in the brain. The condition has several other names such as dissociative seizures, psychogenic non epileptic seizures (PNES), functional seizures …
https://www.dailystrength.org/group/epilepsy-seizures/discussion/non-epileptic-seizures
Yes, it is confusing when doctors talk about pseudo seizures and non-epileptic seziures. Each person and their experience is different. I have a friend who is an alcoholic and she has seizures when she doesn't drink- those are non-epileptic seizures. Sometimes a medicine at too high of a dose can cause non-epileptic seizures as well.
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