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https://www.mayoclinic.org/diseases-conditions/paraganglioma/cdc-20352970
Paraganglioma. A paraganglioma is a rare tumor that begins in certain nerve cells that are dispersed throughout the body. This tumor can affect people of any age …
The Pheochromocytoma and paraganglioma RESearch Support ORganization (PRESSOR) is a non-profit consortium of health science professionals at scientific, medical and academic institutions around the world dedicated to research into improved diagnosis, localization, management and treatment of pheochromocytoma and paragangliomas, particularly malignant pheochromocytoma and paragangliomas.
https://www.cancer.net/cancer-types/pheochromocytoma-and-paraganglioma/types-treatment
Palliative treatments vary widely and often include medication, nutritional changes, relaxation techniques, emotional support, and other therapies. You may also receive palliative treatments similar to those meant to eliminate the cancer, such as chemotherapy, surgery, or radiation therapy.
https://www.cancer.gov/types/pheochromocytoma/patient/pheochromocytoma-treatment-pdq
Pheochromocytoma and paraganglioma treatment is usually surgery and drug therapy. Chemotherapy, radiation therapy, targeted therapy, ablation, and embolization can …
https://www.facebook.com/groups/pheoparasupportgroup
Pheochromocytoma Paraganglioma Patient Support Vision: We’re an online peer support group that provides information, support, and compassion for patients and caregivers who suffer from pheochromocytoma and paraganglioma.
https://ghr.nlm.nih.gov/condition/hereditary-paraganglioma-pheochromocytoma
Oct 29, 2019 · Hereditary paraganglioma-pheochromocytoma is an inherited condition characterized by the growth of noncancerous (benign) tumors in structures called paraganglia. Paraganglia are groups of cells that are found near nerve cell bunches called ganglia. A tumor involving the paraganglia is known as a paraganglioma.
https://www.tapatalk.com/groups/pheochromocytomasupportboard/paragangliomas-t1312.html
Our support group is seeing an increasing number of paraganglioma discussions on the board, in particular head and neck paragangliomas. This forum will be specifically devoted to this topic.
support ppa Your donation assists the Alliance as we work to support the pheo/para community through education, research, advocacy, and a global community of support. give today
https://csn.cancer.org/node/198983
Paraganglioma Support I wanted to let you all know that there's a really active Facebook support group for people with Paragangliomas and Pheochromocytomas. I had a Carotid Paraganglioma removed last February and the people in this support group were immeasurably helpful and it's so active you start feeling not nearly so rare!
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