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We offer a wide range of information and support to help families and professionals manage the complexities of Prader-Willi syndrome. What is PWS? Prader-Willi syndrome (PWS) is a rare, complex genetic disorder that affects both males and females from birth and throughout their lives. ... Just email [email protected] with your comments.
https://www.nhs.uk/conditions/prader-willi-syndrome/
The increased appetite also means there is an increased risk of choking on food, so carers of a child with Prader-Willi syndrome are advised to learn what to do if someone is choking. PWSA UK. The Prader-Willi Syndrome Association UK (PWSA UK) provides information and support for people whose lives are affected by the condition. You can call ...
https://contact.org.uk/advice-and-support/medical-information/conditions/p/prader-willi-syndrome/
Email: [email protected] www.pwsa.co.uk. The Association is a Registered Charity in England and Wales No. 1155846. It provides information and support to anyone affected by Prader-Willi syndrome (PWS). The Association offers family days and weekends, regional events, peer to peer support and training. Group details last reviewed September 2019.
https://www.prader-willi.org/support#!
Local Support. If you are the parent of a child with Prader-Willi syndrome and you need to talk with another parent who shares your concerns, please call Nina Roberto (ext. 3) or Barbara McManus (ext. 2) at 800-442-1655 .
https://www.consensussupport.com/support/our-support/prader-willi-syndrome/
About Prader-Willi Syndrome. Prader-Willi Syndrome (PWS) is a rare genetic condition, affecting an estimated 1500 – 2000 people in the UK of all ages. Individuals are restricted in their daily life through their insatiable appetites and they may experience other complications, such as restricted growth and behavioural problems.
https://www.pwsausa.org/family-support/
A family living with a child with Prader-Willi syndrome (PWS) faces some unique challenges. Remember, if you reach a particularly tough point, you can always call a Family Support Counselor to vent and perhaps think through some new strategies and responses to your situation and …
https://www.prioryadultcare.co.uk/specialist-residential-services/prader-willi-syndrome-support/
Prader-Willi Syndrome (PWS) is a rare and complex condition. We provide a range of specialist services which have been developed since 1998 with the involvement of the people we support, families and care professionals to design best practice in supporting individuals with PWS.
The Foundation for Prader-Willi Research UK is a charitable organisation dedicated to eliminating the challenges of Prader-Willi syndrome through the advancement of …
Prader-Willi Syndrome Association (USA) has been providing life saving research, crisis and family support, medical and new parent support since 1975.
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