Progressive Supranuclear Palsy Support Forums

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Forum PSP CBD CurePSP Prime of Life Neurodegeneration

    https://www.psp.org/ineedsupport/forum/
    CurePSP is pleased to offer this free forum as a place where you can find support within the communities of patients, families and carepartners. Here, you have the opportunity to share daily living tips, frustrations, and feelings that all result from living with, or caring for a …

Network of Support - CurePSP

    https://www.psp.org/ineedsupport/supportgroups/
    Support Group Leader Training. We are always on the lookout for new volunteers to join our network of support. If you have had a positive and fulfilling times with an in-person support group or have first-hand experience with neurodegenerative disease and are looking to give back, please consider starting your own support group or becoming a peer supporter.

Progressive Supranuclear Palsy? - Online Support Groups ...

    https://www.mdjunction.com/forums/lyme-disease-support-forums/general-support/1394796-progressive-supranuclear-palsy
    My mom died of supranuclear palsy back in 2000. No, I don't think it would do any good to test her now for Lyme and it would do my dad in to think of something like that. After reading about Alan MacDonald's work, I wondered if Borrelia could be a cause of Supranuclear Palsy. I just wondering in …

Progressive Supranuclear Palsy Symptoms, Diagnosis ...

    https://www.rightdiagnosis.com/p/progressive_supranuclear_palsy/intro.htm
    Progressive Supranuclear Palsy is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Progressive Supranuclear Palsy, or a subtype of Progressive Supranuclear Palsy, affects less than 200,000 people in the US population. Source - National Institutes of Health (NIH)

"Shortness of breath": Parkinson's Disease Community ...

    https://forums.webmd.com/3/parkinsons-disease-exchange/forum/535?pg=2
    Neurologic disorders that can demonstrate a vocal tremor include the following[4> (see Presentation, Workup, Treatment, and Medication): Essential tremor Parkinson disease Parkinson-plus syndromes - Including multisystem degeneration, Shy-Drager syndrome, basal ganglia degeneration, stroke, progressive supranuclear palsy Myasthenia gravis ...

Living with Progressive Supranuclear Palsy - Posts Facebook

    https://www.facebook.com/lifewithPSP/posts
    Living with Progressive Supranuclear Palsy. 798 likes · 9 talking about this. News and support for those living with or caring for someone with progressive supranuclear palsy (PSP), a rare and...3.7/5

Progressive Supranuclear Palsy (PSP) Symptoms, Stages ...

    https://www.emedicinehealth.com/progressive_supranuclear_palsy/article_em.htm
    Progressive supranuclear palsy (PSP) is a rare degenerative disease of the brain. The disease impairs movements and balance. Many people with PSP also experience changes in mood, behavior, and personality. While there's no cure for the disease symptom management with drugs and and lifestyle changes can improve the quality of life for the person with PSP.

Best tools for non-verbal ALS patient ALS Support Community

    https://www.alsforums.com/community/threads/best-tools-for-non-verbal-als-patient.45513/
    Dec 16, 2019 · ALS support forum. Newly diagnosed Best tools for non-verbal ALS patient ... The one believes it is the progressive supranuclear palsy. She hasn't progressed as I thought she would have if it were ALS. When I brought her to nursing home here was told she had ALS with months to live but that was more a mental breakdown from her receiving ALS ...

Caregiver's Guide to Phases & Stages of PSP - PSP Rumpus Room

    https://www.tapatalk.com/groups/progressivesupranuclearpalsyrumpusroom/caregiver-s-guide-to-phases-stages-of-psp-t366.html
    In 1999 several members of the Johns Hopkins PSP Listserv decided to pool their collective wisdom to try to see if they couldn't catagorize the symptoms associated with the normal progression of progressive supranuclear palsy enabling the defining of phases or stages of the disease.



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