Rett Syndrome Support

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Homepage Rettsyndrome.org

    https://www.rettsyndrome.org/
    About Rett Syndrome. Rett syndrome is a rare non-inherited genetic postnatal neurological disorder that occurs primarily in girls and more rarely in boys. Rett syndrome leads to severe impairments, affecting nearly every aspect of the child’s life. Finding trusted information is the …

Rett syndrome - Genetics Home Reference - NIH

    https://ghr.nlm.nih.gov/condition/rett-syndrome
    Oct 29, 2019 · Rett syndrome is a brain disorder that occurs almost exclusively in girls. The most common form of the condition is known as classic Rett syndrome.After birth, girls with classic Rett syndrome have 6 to 18 months of apparently normal development before developing severe problems with language and communication, learning, coordination, and other brain functions.

Rett Syndrome Fact Sheet National Institute of ...

    https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Rett-Syndrome-Fact-Sheet
    Aug 13, 2019 · What is Rett syndrome? Rett syndrome is a neurodevelopmental disorder that affects girls almost exclusively. It is characterized by normal early growth and development followed by a slowing of development, loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, problems with walking, seizures, and intellectual disability.

Rett Syndrome Resources And Information Girl Power 2 Cure

    https://www.girlpower2cure.org/
    Girl Power 2 Cure is a nonprofit organization leading a movement to end Rett Syndrome, a severe neurological disorder that primarily affects girls but does affect boys as well. Get Support

International Rett Syndrome Foundation - NORD (National ...

    https://rarediseases.org/organizations/international-rett-syndrome-foundation/
    The International Rett Syndrome Foundation is a non-profit, voluntary organization dedicated to three missions: research, advocacy and family support. Rett syndrome, a rare genetic neurological disorder that affects primarily females, is characterized by normal early development in the first year of life followed by a regression, which leads to ...

Rett Syndrome Family Support Groups - You're Not Alone

    https://www.girlpower2cure.org/get-help/family-support-rett-world/
    RETT UNIVERSITY. Rett University is an e-learning platform specifically designed for educators and therapists of Rett Syndrome students. Experienced professionals share their cutting-edge knowledge on how to support students with Rett Syndrome and push them to their highest levels of academic, physical and personal achievement.



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