Find all needed information about Rett Syndrome Parent Support. Below you can see links where you can find everything you want to know about Rett Syndrome Parent Support.
https://www.girlpower2cure.org/get-help/family-support-rett-world/
RETT UNIVERSITY. Rett University is an e-learning platform specifically designed for educators and therapists of Rett Syndrome students. Experienced professionals share their cutting-edge knowledge on how to support students with Rett Syndrome and push them to their highest levels of academic, physical and personal achievement.
https://www.rettsyndrome.org/for-families/resources/state-resources/minnesota/
Parent Recommended Resources; Family Empowerment Representatives. Family Empowerment Representatives are volunteers who provide emotional support, information and resources to families affected by Rett syndrome. Contacting them should be your …
https://www.rettsyndrome.org/for-families/newly-diagnosed/
Register to receive support and resources to empower your family. Our Family & Community Engagement Manager, Samantha Brant (mom to Macy, RTT) will reach out to you right away. We will keep you up to date on the latest research, help you understand Rett syndrome, and provide you with a new parent packet. Register as Newly Diagnosed
https://www.ninds.nih.gov/Disorders/Patient-Caregiver-Education/Fact-Sheets/Rett-Syndrome-Fact-Sheet
Aug 13, 2019 · What is Rett syndrome? Rett syndrome is a neurodevelopmental disorder that affects girls almost exclusively. It is characterized by normal early growth and development followed by a slowing of development, loss of purposeful use of the hands, distinctive hand movements, slowed brain and head growth, problems with walking, seizures, and intellectual disability.
https://www.rettuk.org/how-we-can-support-you/parent-to-parent-network/
Chatting to someone who knows exactly how you’re feeling and understands the daily challenges that Rett syndrome presents can really help. With our Family Contact Network supporters you’re only a phone call away from another parent who you can talk to. Our network is made up of parents who’ll provide a listening ear and friendly support.
Rett syndrome is a severe, lifelong neurological disorder. We strive to support familties with the help of fundraising. Rett UK is looking for volunteers who can provide charity ideas.
https://rarediseases.org/organizations/international-rett-syndrome-foundation/
The International Rett Syndrome Foundation is a non-profit, voluntary organization dedicated to three missions: research, advocacy and family support. Rett syndrome, a rare genetic neurological disorder that affects primarily females, is characterized by normal early development in the first year of life followed by a regression, which leads to ...
https://reverserett.org/about-rett/educating/
Educating Our Girls RSRT focuses on research with the ultimate aim of a global reversal of Rett Syndrome. When this happens, intense remedial therapy and teaching will be required to integrate new levels of functioning. We will want Rett patients to be starting from as broad a learning base as...
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