Sickle Cell Anemia Support Uk

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Sickle Cell Society - Supporting People Affected by Sickle ...

    https://www.sicklecellsociety.org/
    The Sickle Cell Society believes that individuals with sickle cell disorder have the right to quality care. This can only be achieved if funding is made available to educate health carers and other professionals about the condition. The Society aims to provide this.

Sickle cell disease - NHS

    https://www.nhs.uk/conditions/sickle-cell-disease/
    Sickle cell disease is a serious and lifelong health condition, although treatment can help manage many of the symptoms. Symptoms of sickle cell disease. People born with sickle cell disease tend to have problems from early childhood, although some children have …

Support Groups » Sickle Cell Society

    https://www.sicklecellsociety.org/supportgroups/
    This page provides contact information on support groups, local services and NHS Sickle Cell and Thalassaemia Centres across the UK. NHS Sickle Cell and Thalassaemia Centres. For the full list of NHS Sickle Cell and Thalassaemia Centres across the UK, as well as national and local voluntary organisations download the PDF by clicking here.

New Online Platform Created to Support Sickle Cell Disease ...

    https://sicklecellanemianews.com/2017/12/05/online-platform-created-support-sickle-cell-community/
    Dec 05, 2017 · A new online platform, called oneSCDvoice.com, will help those affected by sickle cell disease (SCD) by offering free access to comprehensive support and a robust knowledge network .. rareLife solutions, the health tech, design and research team behind oneSCDvoice and other custom rare disease platforms, will launch the modular community system later this month.

Sickle cell disease - Treatment - NHS

    https://www.nhs.uk/conditions/sickle-cell-disease/treatment/
    Children and adults with sickle cell disease are supported by a team of different healthcare professionals working together at a specialist sickle cell centre. Your healthcare team will help you learn more about sickle cell disease, and work with you to come up with an individual care plan that takes into account all your needs and health concerns.

Sickle Cell - Family Support Service By SCTSP

    http://sctsp.org.uk/
    Am I a carrier? Find out how Sickle Cell is inherited and if you are at risk.

Sickle Cell Disease, Sickle Cell Anaemia. Symptoms ...

    https://patient.info/doctor/sickle-cell-disease-and-sickle-cell-anaemia-pro
    Jan 20, 2015 · Sickle cell disease refers to the group of disorders that affects haemoglobin to form abnormal haemoglobin molecules (HbS). Sickle cell anaemia is the name of the specific form of sickle cell disease in which there is homozygosity for the mutation that causes HbS (ie HBSS).Author: Dr Colin Tidy

Community Health Workers as Support for Sickle Cell Care

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4918511/
    Sickle cell disease (SCD) is a set of genetic hemoglobinopathies characterized by hemolytic anemia, severe pain, and multi-organ compromise. As a result of dramatic improvements in care and longevity, 1 – 3 SCD increasingly has become a lifespan disease, from childhood to adulthood. 4 However, approaches to managing SCD encounter problems at ...Cited by: 16

How schools can support pupils with sickle cell disease ...

    https://www.tes.com/news/how-schools-can-support-pupils-sickle-cell-disease
    Sep 29, 2017 · How schools can support pupils with sickle cell disease. As Sickle Cell Awareness Month (September) draws to a close, school leaders need to understand how the condition can affect pupils at school, and make sure that their policies are offering the right support



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