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SOFT has provided trisomy 18 & trisomy 13 information, resources, support and an annual conference to families since 1980. Skip to content. Trisomy 18, Trisomy 13 and Related Disorders. SOFT is a primary source of information about Trisomy, Care Management and Family Support. Menu.
https://trisomy.org/other-trisomy-18-or-13-supportgroups/
♥ The International Trisomy 18/13 Alliance ITA is a volunteer, not-for-profit organization focusing on trisomy 13 and trisomy 18, (also known as Patau and Edwards syndromes respectively). The mission is to offer trisomy 13 and trisomy 18 support groups, physicians and other professionals, accurate information to enable parents to make ...
https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/trisomy-disorders
The Genetic Support Network of Victoria (GSNV) is connected with a wide range of support groups throughout Victoria and Australia and can connect you with other individuals and families affected by trisomy conditions. Where to get help. Your GP (doctor) Paediatrician; Victorian Clinical Genetics Services Tel. 1300 118 247
https://www.internationaltrisomyalliance.com/trisomy-support-groups.html
Trisomy Support Groups Hover over the links below for information, and click the link to visit the website, or email if there is no website. Please note, however, that we have no control over the nature, content or availability of those sites.
http://members.optushome.com.au/softaus/
The Support Organisation for Trisomy in Australia : The birth of a healthy baby is one of the most exciting and eagerly anticipated events a family can experience. However each year in Australia many families are devastated to learn that their precious and much …
https://www.trisomy18.org/what-is-trisomy-18/
Some infants will be able to survive to be discharged from the hospital with home nursing support to assist with care by the parents. And although 10 percent or more may survive to their first birthdays, there are children with Trisomy 18 that can enjoy many years of life with their families, reaching milestones and being involved with their ...
http://www.geneticalliance.org.au/conditions_detail.php?Down-Syndrome-Trisomy-21-159
Help Support Genetic Alliance Australia. Click on Bert, the Genetic Alliance Frog - to make a donation. All donations over $2 are tax deductible.
https://compatiblewithjoy-trisomy18.blogspot.com/p/supports-for-families-facing-trisomy.html
Supports for Families Facing a Trisomy Diagnosis This is by no means an exhaustive list, but it's a start. Know that YOU are the parents and YOU should be able to make decisions for your child.
https://www.babycenter.com.au/thread/4152616/nipt-positive-for-trisomy21--help
NIPT positive for trisomy21- HELP: Hi all I have already posted here regarding risk in NT SCAN and combined blood tests. I was given a 1:32 risk for trisomy 21 ( downs) I have been referred to the hospital but it is taking forever so after lot of thinking we decided to do the NIPT and got referal from gp. Now the results are in. We live in western australia and the test we did ...
http://www.geneticalliance.org.au/conditions_detail.php?Patau-Syndrome-Trisomy-13-418
Patau Syndrome (Trisomy 13) Home; A-Z of Genetic Conditions; Patau Syndrome (Trisomy 13) Contact: SOFT - Support Organisation for Trisomy in Australia Tel: 0407 820 560 ... Help Support Genetic Alliance Australia. Click on Bert, the Genetic Alliance Frog - to make a donation. All donations over $2 are tax deductible.
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